34Yr Woman With Mgus

Hello,

I was diagnosed with MGUS in 2000 and at the time wasn't given much information on the condition - so i didn't worry about it too much.  I was tested again a week ago for the condition and my levels of IgM have increased....from 4.28 g/L in 2000 to 4.56 g/L when tested last week (Mar 14, 2007).  My doctor knows very little of this condition and has referred me to a hematologist, who i've yet to see.

I am also hypertensive (on meds) and have high blood sugar levels (diet controlled). 

I have read everything i can get my hands on about this condition.  I can't find any information on women of my age with this condition.  It's very frustrating to say the least.  I have so many questions.  Can anyone out there shed some light????

Thanx, Lms73

 Hello Lms73:

I did a post previously on the message board on this subject but will be happy to repeat.  MGUS is the precursor, often to Multiple Myeloma.

You can have it for years and nothing gets worse but tehn it takes of and develops a more serious form..YOur red blood cells do not form properly.  MY mail cousin had it 9 months ago and now all symptoms are gone..I will write a suggestion here and if you wish to do something send an email and I will give you further details..He took a natural supplement poly mva and in 3-4 months of low dosage it was taken care of.  Now one has to keep taking the poly mva 1-2 tsps day to keep it away.  I myself had end stage Multiple Myeloma and used this supplement and truly am a miracle.  I am in total remission when no one gave me a prayer of living.  I probably had MGUS for years but did not know it. I suggest you look under the Multiple Myeloma posts for March as there are several postings from women there.  All the best..Elaine 

On 3/24/2007 Lms73 wrote:

Hello,

I was diagnosed with MGUS in 2000 and at the time wasn't given much information on the condition - so i didn't worry about it too much.  I was tested again a week ago for the condition and my levels of IgM have increased....from 4.28 g/L in 2000 to 4.56 g/L when tested last week (Mar 14, 2007).  My doctor knows very little of this condition and has referred me to a hematologist, who i've yet to see.

I am also hypertensive (on meds) and have high blood sugar levels (diet controlled). 

I have read everything i can get my hands on about this condition.  I can't find any information on women of my age with this condition.  It's very frustrating to say the least.  I have so many questions.  Can anyone out there shed some light????

Thanx, Lms73

Yes, you are doing the right thing by seeing a hematologist. I have read small percentage (1% +/-) of those with an MGUS progress to multiple myeloma every year, and a percentage never progress. I would get a relationship going with a hematologist that wants to check you regularly (every 3-6 months?). If the MGUS increases too much, I imagine your hematologist will want to eventually x-ray your bones to look for tumors, and do a hip marrow biopsy to see if anything is there also.

I am 36 and have an "m-spike". My situation is a little different in that I have had a tumor (plasmacytoma) and have had it treated successfully. My m-spike is back (after 3 years), so my hematologist/oncologist, has moved me up from blood checks every 6 months to every 3 months.

You could very well have an MGUS the rest of your life and it turn out to be nothing, but better safe than sorry.

I am curious, in what part of the country do you live. In the city? In the country?

Hope that helps...?