Looking For A Person Or Family Who Has Similar Situation

My sister was diagnosed with renal clear cell carcinoma in June 2003. Her left kidney was removed, however, the cancer had spread to the lungs and nodes. She unerwent a trial med in Seattle earlier this fall. The treatment did show progress but her body could not tolerate the doses. Along with other factors she has returned to North Dakota and her lungs are now in pretty bad shape. She just started on oxygen yesterday and will be undergoing therapy with interferon and interluekin bio meds soon. She is a medical professional and is finding all of this hard to take. She has two teenage children and is 48 years old. I am looking for anyone who themselves or a family member in a similar situation.
Thanks.

Lisa,
my husband has renal cell carcinoma with mets to the lungs and brain. Please go to Steve's website and scroll down to where it says kidney onc list...you will find a wealth of info and support by joining this wonderful mailing list. Tell your sister not to give up...my husband had surgery in March of 2002 and despite now being diabetic and on oxygen we are not giving up the fight. He did treatments of low dose IL-2 as well as radiation and we are still hoping for a surgical option with cyberknife for his brain mets.

http://cancerguide.org/kidney.html

Best Wishes,
Val La Rue

I have been battling cancer since 1988. Been operated on 4 times. In 1997 it came back in left kidney, had kidney,adrenal gland and 2 ribs removed. Made it til 2001 it came back in lungs and lymph nodes in chest. I was told my situation was bad. I refused
more surgery. I am now free of cancer. After 16 years of research and a lot of sleepless nights CTCA put me on the right track.

Contact me at any time. I'll reply as soon as I get your message.

Chase in Va.

Hi Lisa R, My name is Jeff and I have adenocarcinoma. It was discovered in March 1999 while living in Minot, ND. It was thought to be primary liver and they removed my left lobe and while having surgery found out my gallbladder needed to be removed as well. This all happened at a hospital in MN. My wife and I and Son moved to Maine where I kept getting check ups and in January,2003 It was found that my cancer had gone to my lungs. I have been having 4 month check ups since then with my cancer showing spots on both lungs and slowly increasing in size, but very very slow progression. I have not had any treatments like chemo or radiation. I have been drinking Indian tea for the last 3 years and taking a mild 1Mg sedative daily increased all vitimins and minerals times three, with cod liver pills and 2 months ago started IP-6 with Inistol 4200mgs twice a day. I will be going for a check up the first week of June to see if this new added therapy has reduced or as least slowed down the tumors from growing. My Oncologist simply recommeded I keep doing whatever I'm doing as trying any chemo at this time could open a bag of worms. By the way We know live in Wichita KS. My daughter had our first Grandson just over 2 years ago and will be having a granddaughter in July I,m hoping and praying for a couple of miracles a healthy granddaughter and a grandfather who will be around to watch her grow up, even if it is only for a couple years would be great. My prayers and thoughts come with this message. Hope, Prayer, owning the cancer then take enough herbal, relaxtion, and vitimins and minerals to alter cells and genes a little is my approach I guess, and to stay positive and active and even close ones don't really know the internal rollercoaster it is to have a dreaded illness a this. Hope to talk with you soon or at least acknowledge my Email, I will understand. Keep your Chin up! Jeff

Hi
My name is Janet. I'm 62 years old & was diagnosed with Renal Cell in June 2000. My right kidney was removed. Two years later in July 2002, my tests showed that the cancer was now in the remaining kidney & in the pancreas. It has since also gone to the adrenal gland. I did the Interluekin trial but could not tolerate it. I'm now on Interferon but at half dosage as full dosage caused an increase in enzymes in the liver. The Interferon I'm on is from China & is called Rinferon. There are absolutely no side effects after the first day. The leasion in my kidney has grown quite fast since my last test & so I'm am seeing a surgeon who will possibly perform radio frequency surgery on it. This should burn out the leasion without harming anything else around it. Don't know how the pancreas is doing as I cannot do a cat scan using the dye. After 4 years, I've suddenly become allergic to it! It makes it difficult to see the pancreas clearly. They may do a pet scan.
I'm very active in my church, especially in our Evangelization ministry. My faith (I'm Catholic) has helped me tremendously through all of this. The only thing missing has been someone to share it all with that is going through the same thing. Please stay in contact & let me know how your sister is doing. I'll be praying for her.
Janet

To all Kidney Cancer Friends,
My husband has metastatic renal cell CA in the lungs after having his right kidney
removed in 2002. He has had immunotherapy which includes interferon and interleukin plus Lukine (to increase white blood cells). He currently in on the newest drug, Avastin, which is not approved for kidney CA, but showed good results
during trials. Other than new onset high blood pressure, he feels very well and at times it is difficult to remember he has CA. His attitude it great and we have lots of friends all over the world praying for him. He has had three CT scans which show that there is stabilization...from the drugs or the prayers or just his body taking care of business??? We are contemplating stopping all treatments and just
have periodic exams and scans to monitor the progression. I am looking forward to hearing from all of you, about your tretments and progress. It sounds as though everyone has a little bit different treatment regimen...don't we all wish that the medical community would find the magic bullet to cure everyone!!!

Please keep us posted on the results from Avastin. I think that was one of the drugs our onc mentioned and something else that starts with a T. The good news is my husband's MRI showed no new brain tumors and the existing tumors have not changed since January....this is wonderful news for us and he seems to have perked up just hearing that! I have him on vitamins and of course his diabetic diet and since he gained 10 pounds I am very happy about that. Never give up!

Chase L.

I would appreciate any information you may have regarding your fight with cancer.

Carolyn

Hello Chase,
I tried to get in touch with you before but it did not work. Have had a number of things happening since more original message. My sister has underwent low dose interferon and IL 2 for RCC. Has had a hard time with side affects. Just came from the hospital. The Dr. was not very encouraging and recommended low dose interferon 3 x week. Looking for other options? Thanks, lisa

I have breast cancer, and recently saw a doctor on TV. She also had breast cancer in the advanced stages with mets to lymph nodes in the arm pits and neck and didn't want to undergo chemo or radiation. She didn't want to have surgery to remove the tumor either, but finally had part of it removed. This doctor cured herself through nutrition, diet, and herbal remedies. She said people with kidney, liver and pancreatic cancer were also cured through this method. I know she has a website where you can get more information, just do a search.

Good luck!