Mixed Mullerian Carcinoma - Can't Find Any Information

One year ago I was diagnosed with Mixed mullerian carcinoma with 2 components, 1. ceerous-like ovarian cancer and 2. rhabdomyosarcoma, cancer of the muscle tissue. I've had hysterectomy, chemo, radiation and internal radiation. At the end of treatment in Dec.2003 my CA125 level was 8.8 but since then has gone up to 35. Will be going for more tests, but I'm looking for anyone with this type of cancer. The internet has been of little help so far. Can anyone tell me where to look? When I asked my Dr's about infro on the internet they just said I would't find much. They both have only treated 2-3 cases of this type of cancer. I would appreciate any information and would love to talk with someone having the same cancer. Thanks so much. Pat

This is the first time I have heard of this type of cancer. I went to Yahoo and did a search and found some information, I'm not for certain if any of this info could help.

http://www.esmo.org/reference/abstracts00/gc/391.htm

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&d

http://pathweb.uchc.edu/eAtlas/Nav/amtui.htm

I hope this help's...If not go to www.yahoo.com and type your condition in the search and it came up with a lot of things.

Try to have a great Valentines Day.

Pat, I have the same type of uterine cancer as you. I went to the Cancer Treatment Centers of America for my treatment. Dr. Williams is a wonderful doctor there. Check with the Midwestern Regional Medical Center branch and you will be able to find out more about this type of cancer.

My mother was diagnosed with this cancer 4 years ago. At that time there was only 1300 cases ever documented. The survival rated was less than 10%. She passed 7 weeks after surgery and diagnosis.

My mother had Mullerian cancer, she was diagnosed
in 1995, as you say there is not much known about it. The doctor that treated her only sees about 2 cases per year. She had hysterectomy and was given double chemotherapy treatment and had no problems after that. She passed away in 2001 but it was from heart problems not from the cancer. www.cancersource.com gives a complete description of the condition.

Stay strong and think only happy thoughts.

Regards
Sheena

I was just diagnosed with Mixed Mullerian Malignancy Tumor this March. I had a total hysterectomy and am under going radiation now. I have had five treatments and have four more weeks of the same. I was lucky...by GYN did not sit on his duff and immediately did the D&C which showed the MMMT. He got me into a GYN Oncologist the same day he got the path report and in three days I was scheduled for surgery. I do not believe I would have the positive prognosis I do if he had not been so quick to take care of me. The MMMT had only gone 50 % into my endometrium and all 15 lymph nodes and the washings were negative.

I guess the moral to this story is if you are post menopausal and have bleeding...have your GYN do a D&C and not just an endometrial biopsy..mine was negative....! You cannot rely on just that...

I thank God every day that this was caught so early and urge any female with the same symptoms to not hesitate to see their GYN.

All I have to do now is get through the radiation.......;)

Dear Vanseskie,

My mother was just dagnosed with MMMT. She immediatelly underwent surgery and now she is under chemo with doxorubicin+cisplatin. But the doctors didn't tell us anything about radiation. I would really appreciate if you could inform me what type of radiation they used for you.

Thank you. My thoughts are with you and all the women that suffer from this rare type!

hope to hear from you soon.

Angelika

Hello everyone-

My mother was diagnosed with uterine MMMT in April 2004. I too, have been scouring the internet trying to find information on this disease. I too noticed that there was no readily available support group out there, so I started one. You are all welcome to join. Here is the link:

http://health.groups.yahoo.com/group/UterineMMMT/

You will need a Yahoo ID (which is free) and you will need to request membership, which I of course, will give you (I don't check everyday, so if there is a delay, just be patient). I have the board 'protected' for membership to protect everyone's privacy. In any case, the group is very small, but there is some really good information and articles there. There are some patients and some, like me, who are patient advocates.

Good luck and God bless you all!!

My son passed away two years ago from this type of cancer. He was sixteen. He started with blood in his urine, and this went on for some time. He eventually had a ct scan followed by a biopsy a couple of months later. All were reported normal. Several months later (almost a year) he started bleeding pretty bad. To make a long story short the test all showed abnormalities that were overlooked. By the time I found a doctor that could help it was to late. The tumor was huge and there was a major spill over during surgery, he passed seven weeks later. He had a uterus that was found during the last few weeks of his life that showed up in the beginning but the doctors did not do their job. I was told two years ago that chemo would not help at any stage. Has this changed, are there any new TX. Would love to here from anyone that is surviving this monster. My heart and prayers go out to each and every one of you. I have not even been able to look at his picture as of yet, the pain is too great.

My mother just had a hysterectomy for Mullerian Cancer, and found that it had spread. It wasn't in the liver or any lymph nodes yet but the doctor says she only has ten percent chance of pulling through. We live in Tulsa, and are taking her to Cancer Treatment Centers of America later this week, but he says it sometimes doesn't respond to chemo. Please help if anyone has any information for me.

Thanks, Kim