Urachal Cancer

Hi Doc

I´m a Costa Rican 31 years old. Doctors find me an urachal cancer, they removed with half a bladder and 10 ganglions.

One ganglion came positive but all biopsis made the surranding areas came negatives

All that was on august september 2006.

Past mont docs find trhu a Ultra sound and Tomography that maybe one more ganglion is with metastasis bucause they saw a little ball right next to my bladder and also  a focal lession on my liver

I m still positive. What concerns me is that docs gave me chemo, XELODA and something called like ioxiplatinun (for colon cancer). That seems not work.

2 questions 1) can you recomend me some chemo theraphy

2) how much can cost to be treathed at your hospital ???

 

Thanks.

Excuse my grammar and writting.

 

ANGEL MORENO B

Costa Rica

There is so much hope. My sister has been under care for 4 years battling urachal and has been thru 2 chemo regimes and 2 surgeries and still doing great and living life. She had a re-occurence in March and could not have the tumor surgergically removed so her Dr. put her on an experimental daily pill and as of Monday, it appears her cancer is shrinking and has not spread. She feels good and looks good including her hair after 170+ days on this pill. Please also use the search engine and search urachal adenocarcinoma. There is a blog with about 72 entries including the ones I wrote re: my sister. Her experimental protocal is at Columbia Presbyterian Hospital in NYC. Her oncologist is Dr. Petrylak. Please have your doctor contact him or call directly. You can find his number on the hospital web site. Tell him you got his name from this site and Melissa (Jane's sister told you about him). There is so much hope. For those MD Anderson , look up the entries for a Dr. Songbird -- he has a GREAT urachal story and is willing to help anyone. You can reach him via MD Anderson -- his real name is on the messages when you do the search noted above. Maybe we can start using the other blog so we can all stay in touch. There is proabaly about 22 other folks speaking on the messages under urachal adenocarcinoma. Also check out the ones under bladder cancer. Best to you Melissa (Jane's sister)