One patient with glioblastoma still alive nine years later
by Debbie1975 on Sat May 15, 2004 12:00 AM
by Dakotazdream on Tue May 18, 2004 12:00 AM
by Prayerful on Mon Jan 02, 2006 12:00 AM
by Dakotazdream on Sat Jan 07, 2006 12:00 AM
by Frankl1n on Fri Feb 17, 2006 12:00 AM
by sheilac3 on Tue Sep 04, 2007 12:00 AM
On 2/17/2006 Frankl1n wrote:I have only just joined this board so I hope you are still monitoring it. I had a large SCC removed from my head 4 yrs. ago. Luckily no mets. from the research that I have done it seems that if the tumor is removed from your face, the danger point is about 5mm. my tumor was 3 1/2 cm x 5mm so it was right on the border (and my temple), we opted for no further treatment and I was lucky. In addition to everything else you've been told, find out how deep it was. That will give you the best indication of how much more you should worry about.
by lynnhamm on Tue Aug 24, 2010 11:40 AM
My father had squsmous in his lung..Then found brain cancer not long after this came about..We have found out now my mom has it on her face, so wow you know just hang in there keep praying..I don't know where you are located but if you are anywhere close to Memphis Tenn. there is a clinic called Jones Clinic they are awesome, of course they are not God but it is a fine clinic. My moms friend who has cancer was told nothing more could be done for her and mom suggested them Dr. Jones told her there are a couple more treatments they can try so her old doctor had not exhausted all treatments so she is very happy she went they are in discussions about what they can try..Good luck sweetie keep the faith, God Bless You
by redskinsfan69 on Wed Nov 30, 2011 08:50 PM
I realize this is an old thread. If anyone is still checking in on it, I'd love to know how you're doing? My brother recently dx with stage 4 cutaneous scc. I'm so scared and don't know what to expect. I've tried posting in several places here but no one is getting back to me. I am seriously a ball of confusion and would love someone to talk with. I sure hope y'all are doing well and that's why this thread has been inactive! prayers, Kimberly.
by Dakotazdream on Sat May 12, 2012 02:26 PM
On Nov 30, 2011 8:50 PM redskinsfan69 wrote: I realize this is an old thread. If anyone is still checking in on it, I'd love to know how you're doing? My brother recently dx with stage 4 cutaneous scc. I'm so scared and don't know what to expect. I've tried posting in several places here but no one is getting back to me. I am seriously a ball of confusion and would love someone to talk with. I sure hope y'all are doing well and that's why this thread has been inactive! prayers, Kimberly.
On Nov 30, 2011 8:50 PM redskinsfan69 wrote:
I am doing fine! My last mets of cancer was in 2004. Hang in there
by shellycemt on Thu Jul 12, 2012 10:42 AM
I had no way of writing as I'm new and didnt know how to start a thread so I'm beaaming off you. I have had since 1999 approx 13 surgeries 4 were melanomas the rest alll kinds I cant remember basl cell mostly and just hot spots thye called them they were not yet cancer but they were begining to change color and they thought why shes out lets take these b4 sheer has to come back for them and I was very happy dispite the massive scarring but they show mostly when Im wearing a bathing suit and even thoough my condo is on the beach I stay out of the sun. I have my own connection to lancomb self tanning creme as my legs look super tanned as iv used it for so long iv got all the kinks out and they (my legs) do look nice! SOOOOOOOOOOOO here goes my war story of woe, I am not so famiar with squarmis cell ca as iv said mostly melanomas and basal cell. well i saw the changing in both my breasts, following implsnts in spring of 99 by fall while stil healing i had had 2 symetrical freckles on each breast WOW I'm watching these heal and they r getting black? square? and moving? I'm still with this ah breast implant guy who did a horrific job on my breasts and i ask whats up with these freckles im 39 way back then skin ca wasnt what it is today (like aids) and i ask what i should do he tells me get this id b in my primarys chair tomorrow and I was and she said u need to b in ur derm chair tomorrow which i was already sceduled to b! Well yes one was something the second they said dont worry about it as it doesnt look as bad as the one that was basal cell, well it was "melanoima" i cried because at 39 not knowing too much about skin canccer except that ur hearing more and more horror stories about ppl dying from it , i fell apart! I scheduled at the Beth Isrealo a big city hospital with a big city Dr. that woman should have had her licence taken away, all i know is i awok in the recovery room they said they were able to save the nipples but they found her and her staff of dr's who were in school took it upon themselves to take 9 other what they considered hot spots possibly they may or MAY NOT turn cancerous, the nurse in chasrge of me was very kind as when i awoke I felt like I had had sex with edward scissor hands, my body throbbed form my hips butt stomach back and breasts shame shame on this woman and the nurse looks at my little prescription Im holding and takes a fit, she gave me a prescription for 2 5 mg percocets! OMG how on erth with a custody case going on in the courts having to wear tight slip act: with all these stitches every where? she chased that dr down and was agressive that she needed to write me more medication and she refused.. I was soo sore..i went home my paralyzed brother gave me some of his meds as he felt bad but his were 80mg oxycontin and all i did from that was puke for 4 hrs and bust open stitches I went to my pc to have themtaken out and I dk where dr rose is today but being older wiser, I would love to be the one that got to write the medical board about her.13 yrs have now passed and iv had like i said probally 13 surgeries as they are always finding something........Last thurs I met with my derm and he froze off 4 spots 2 on chest 2 on face all precancer and then he got to my nse were I had a bump scab growing I knew going in it wasnt gonna be great but i WAS hoping theyd cut it off, they did and biopsied it ...(SQUARMIS CELL) im like ok new one on me i assume there isn't much to worry about till they call mon with the dx then by end of day they had me booked for what i thought surgery with what they said i couldnt get my dr of choice as we need to move wuick, then i hear from the dr who did my face befour with almost no scarrring and im like look whos doing my surg u have me very confused u have me thurs lined up with a dana farba dr and now ur saying im meeting up with the moehs dr and the nurse says "yes michelle u have s.c.c.c and its the fastest moving cancer youll see dr finn ( moehs) after u meet ur plastic surg who will look u over and decide where to skin graph u from to comver the whole and then of course ull need radition, which can make you a little sick) now im balling my eyes out uz she said radiation might not even get alll this, and i aske about my hair aand she sais it a side affect i NEVER knew that! I go into shutdown mode herd nothing else and mom my daghter with no dad and an elderly nan my mom who has list of issues isnt long for this world id b leaving my 25 yr old daughter an orphan, she has a step brother 1 whos grown up living with dad but when i told his dad Id be going thru some things for my health and might not make allmy visits you know that rotten bastard laughed and said GOODLUCK haha..what that did on top of the nurse left me feeling dead already. my girlfriend is a nurse and she said lets caqll back see if you can talk to dr and sure enough he got on and told me whats what i asked about the radiation he said who said that i said ur nurse he was so irate at her, i didnt have the heart to tell him she said I might not pull through as i know she for just the radiation was on thin ice and he assured me we would getr thew cancer and the plastic surg would fix me up beautiful and i was to relax? I just said WTHELL did that woman do to me and WHYYYYYYy why would she have put out such negtive info snd the dr said i was not to worry it wss gonns b fine so ill know more today, and try to figure hooe to get back here to tell u all what im to expect? I guess it could be anything..my best wishes shelly
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