Avastin/Taxol/Carboplatin questions...

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Avastin/Taxol/Carboplatin questions...

by Dothedewmom on Sat Apr 14, 2007 12:00 AM

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Mom will start this new combo on Monday since the Alimta failed..Is there any advice anyone can give to us for these medicines. I know what I have read about these drugs but I want some real life experiences. Any self care tips are appreciated. This chemo combo is her last option. Her cancer nurse seems to think this combo will do her in as far as the side effects are concerned. And she will have some degree of hair loss.. Thank you ahead of time for any advice you can give.. And bless everyone who is fighting this fight.  

RE: Avastin/Taxol/Carboplatin questions...

by Littlejo on Sat Apr 14, 2007 12:00 AM

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My mom was treated with carboplatin, avastin and taxol. She had four chemo treatments which shrunk her tumor 30%. The side effects are horrible. I am not going to sugar coat it. But everyone is different. Her hair fell out completely, she had nose bleeds, fatigue, dehydration, low white blood count, low red blood count. After the third treatment is where is got worse. The fatigue and the weakness is the worst, she had thrush in her mouth which is a fungal infection which was very painful. The dehydration makes you feel very ill as well, make sure your mom keeps herself hydrated, keep immodium in the house for diarrhea. No one knows what there side effects will be, you have to treat them as they come. I hope your mom does well. Keep us posted.

RE: Avastin/Taxol/Carboplatin questions...

by Clancy on Sun Apr 15, 2007 12:00 AM

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I hesitate to replay because my husband who took the same chemo had quite a reaction from the taxol. Please keep in mind though that everyone body handles things differently. I have been told this mixture of meds is quite responsive to many. My husband had three treatments of the taxol and unfortunatly developed a problem with blood pressure dropping after he has stood for about 20 seconds. He can sit for just a few seconds and then get up and walk again for another 20 seconds. Dr. said was a side affect from the Taxol. We had been given information to read prior to takeing the chemo but  was so desperate for any help. I guess I would just say try to listen to Dr. also sounds like nurse takeing care of your  Mother. Her over all condition. There are side affects from any of the Chemo. Unfortunatly is my husbands case the cancer continued to grow so he did stop all treatment. He decided the treatment was actually harder than dealing with the nsclc. Since that time he has became a little stronger and has decided to just enjoy every day he has. It has been good to see him stronger and he seems also mentally  able to accept and handle the situation, feels like he is more in control. I am sorry that you have to be dealing with this. My prayers will be with your family, and all those familes dealing with such terrible disease.

RE: Avastin/Taxol/Carboplatin questions...

by Jenniferc on Tue Apr 17, 2007 12:00 AM

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My mom just finished her 4th and final round with this combo, now she will just go on avastin to keep the cancer under control.  My mother has seen a significant improvement in the cancer on this drug combo.  She has lung cancer that has spread to brain, spine and hip.  Like LittleJo said above I won't sugar coat it, the side effects are bad.  BUT they can be managed with the right meds.  The BIGGEST thing is to keep on top of the nausea.  That means taking the anti-naseau meds on a regular schedule feeling ill or not.  Skip a dose - pay for it later.  We learned that with my mom.  The taxol causes pain, which my mom would start experiencing about 4 days after the treatment and it would continue for 4 days.  Pain meds took care of this but they make her sleepy, and she could only take them if she had been good about the anti-nausea meds.  Don't accept the cheap first alternative meds for nausea.  Tell the doctors that you mom has a very sensitive stomach and you want 2 different types of antinausea meds on hand in case the first doesn't work.  Have your mom take them around the clock, even waking up in the middle of the night to take it.  That lack of 15 minutes of sleep will pay-off when she can keep her breakfast down.  Lots of nibble meals, nothing heavy.  My mother could not be in the same room as any food being prepared as smells would send her to the bathroom.  Try to make simple food and give her things that are easy on the stomach.  Banana, rice, cereal, toast.  Ensure milk shakes are high in calories and nutrients and are good for people with trouble getting enough calories.  Milkshakes.  Whatever her heart desires.  Be prepared that you mom will probably lose all of her hair on her body.  That happened to my mom but it took a while.  Additionally, be prepared that she will sleep ALOT and will really not be part of any activities.  I know this all sounds pretty bad, but if it works it will have been worth it.  After 2 rounds of this they usually do a scan and check how things are going so if they think it is working they will do more if not they will stop.  I pray your mom handles the treatment well and I will be thinking of your family.  Jen

RE: Avastin/Taxol/Carboplatin questions...

by Dothedewmom on Tue Apr 17, 2007 12:00 AM

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Thanks to everyone who replied to my questions. And thank you for not sugar coating this. Like I said I could read all I wanted to about the side effects but I wanted real life stories. Her treatment went well.. It took all day long. Her appointment was at 8:45 and they didn't get her hooked up until 9:30 or so and at 5:39 she was just getting unhooked. I really hope this combo helps as this is her last option. The doctor isn't even hopeful that Tarceva will help. My mom has been so strong through all this. She says that she is prepared to handle what ever comes her way. That God will help her make it through this. I do believe that but it doesn't mean it will be an easy road. She goes today for a shot of Neulasta. Hopefully that will help boost her immune system.. She found out yesterday that she has a kidney infection. No signs of that were present. But when they did her urine test she had some blood in the sample. So here's another infection. She is just getting over her second lung infection since Jan07.  I'm sure I will be back on here asking more questions about these drugs. I know it's a little early seeing how its not been 24 hours since her treatment but she said the only thing that has come from this medicine is a lot of hiccups. Bless all who are fighting this terrible fight.

Melody

RE: Avastin/Taxol/Carboplatin questions...

by Pebble on Thu Apr 19, 2007 12:00 AM

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On 4/14/2007 Dothedewmom wrote:

Mom will start this new combo on Monday since the Alimta failed..Is there any advice anyone can give to us for these medicines. I know what I have read about these drugs but I want some real life experiences. Any self care tips are appreciated. This chemo combo is her last option. Her cancer nurse seems to think this combo will do her in as far as the side effects are concerned. And she will have some degree of hair loss.. Thank you ahead of time for any advice you can give.. And bless everyone who is fighting this fight.  

I have had 5 rounds of this combo. (Taxol, carboplatinum and Avastin).  Every 3 weeks.     I am feeling pretty good about the time I go in for the next treatment.     I take anti nausea meds for at least 3 days and eat everything in sight.    I lost my hair 2 weeks after the first treatment.  My scans are showing much improvement.   Do have fatigue but it is not unbearable.     Do not listen to anyone who is negative.    Prayers are with you...

RE: Avastin/Taxol/Carboplatin questions...

by Angela64 on Thu Apr 19, 2007 12:00 AM

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On 4/14/2007 Dothedewmom wrote:

Mom will start this new combo on Monday since the Alimta failed..Is there any advice anyone can give to us for these medicines. I know what I have read about these drugs but I want some real life experiences. Any self care tips are appreciated. This chemo combo is her last option. Her cancer nurse seems to think this combo will do her in as far as the side effects are concerned. And she will have some degree of hair loss.. Thank you ahead of time for any advice you can give.. And bless everyone who is fighting this fight.  

My father has had 3 rounds of the chemo combination.  His biggest side effect is joint pain, particularly in the knees.  Very painful but he does take pain medicine and a steroid to try to keep it under control.  He has the pain from day 3 through 9 and then it gets much better.  Besides losing his hair, fatigue around day 7 through 13, and knee pain, he is doing very well.  He just had a PET scan on Tuesday of this week and after three treatments, according to the nurse, he has had an excellent response with no new cancer showing and the exsisting tumors have greately reduced or have completely gone away (Dad has Stage IV NSCLC). 

Because of the good news that we received, he states that the pain and fatigue is well worth it.  Stay positive and don't doubt, just believe!

 

RE: Avastin/Taxol/Carboplatin questions...

by Audreyb on Fri May 04, 2007 12:00 AM

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On 4/19/2007 Angela64 wrote:

 

On 4/14/2007 Dothedewmom wrote:

Mom will start this new combo on Monday since the Alimta failed..Is there any advice anyone can give to us for these medicines. I know what I have read about these drugs but I want some real life experiences. Any self care tips are appreciated. This chemo combo is her last option. Her cancer nurse seems to think this combo will do her in as far as the side effects are concerned. And she will have some degree of hair loss.. Thank you ahead of time for any advice you can give.. And bless everyone who is fighting this fight.  

My father has had 3 rounds of the chemo combination.  His biggest side effect is joint pain, particularly in the knees.  Very painful but he does take pain medicine and a steroid to try to keep it under control.  He has the pain from day 3 through 9 and then it gets much better.  Besides losing his hair, fatigue around day 7 through 13, and knee pain, he is doing very well.  He just had a PET scan on Tuesday of this week and after three treatments, according to the nurse, he has had an excellent response with no new cancer showing and the exsisting tumors have greately reduced or have completely gone away (Dad has Stage IV NSCLC). 

Because of the good news that we received, he states that the pain and fatigue is well worth it.  Stay positive and don't doubt, just believe!

 


 

RE: Avastin/Taxol/Carboplatin questions...

by Audreyb on Fri May 04, 2007 12:00 AM

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First of all, my prayers are with everyone on this site.  My sister who had shoulder pain which started in the late fall, was sent to physical therapy.  Not working they did an mri and determined she had stage four lung cancer that is traveling up her shoulder, in her adrenal glands, lymph nodes and in her hip bone.   This was late January.  She has had 35 radiation treatments with "soft core" chemo at the same time.  Starting today she had the triple A/T/C.  I just talked with her and she is feeling (as she has been) the fatigue.  I try to stay positive with her, however, she is going to have another dose in three weeks.   After reading your comments, I know that the worst is yet to come.  I did call her and tell her to continually take to the anti-nausea medicine.  Not to wait until she feels sick.  Positive, that is what you have to do.  ANYTHING positive is a good thing.  Again, thank you for this site.  She is my best buddy and I will do anything to make her well.  The ironic thing is that she volunteered to bring cancer patients to church, treatments and did meals on wheels.   I am also a cancer survior (colon and entrometrial).  Our mother died of colon.  I should be the one.

RE: Avastin/Taxol/Carboplatin questions...

by Margery on Fri Jun 12, 2009 12:00 AM

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I have had 23 round of chemotherapy....it's with Avastin/Taxol/Carbo.  Of course after 10 treatments they take you off the Carboplatin, before they took me off Carbo, they took me off Taxol, cause I was having such horrible pains from my hips to my ankles and neuropathy was pretty bad as well, but I've been on the Avastin...(well I'm almost 100 per cent sure Avastin) I am on a clinical study and they Avastin is the blind drug....but from my side effects, I believe it's the real thing.  Taxol is a very wicked drug and God Bless all that are still on it.  My comment though is why don't you have the cancer centers give you Aloxi, or another kind of drug that they give right before chemo and it last 4 to 5 days, It really works....the first treatment, I did have to take naseau med at home, but Aloxi is what I took and it worked wonders....might want to ask your doctor's about it.
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