Confused About Mgus

I was recently diagnosed with mgus following several botts of "Flu's" which seem to last longer each time. the doctor said he was just taking the test to rule it out because everything they were testing for came out negative-however mgus camr back positive. now i dont understand something -everything i have read states mgus has no symptoms. i have pain, headaches, swelling at times and total fatique. my physican thinks these symptoms may be pscho-somatic. does anyone else have symptoms?

 

On 4/17/2007 Debbie jo wrote:

I was recently diagnosed with mgus following several botts of "Flu's" which seem to last longer each time. the doctor said he was just taking the test to rule it out because everything they were testing for came out negative-however mgus camr back positive. now i dont understand something -everything i have read states mgus has no symptoms. i have pain, headaches, swelling at times and total fatique. my physican thinks these symptoms may be pscho-somatic. does anyone else have symptoms?

Generally you will read that there are  no symptoms, however many patients report the things you describe.  Here is a message board devoted to MGUS which may be of assistance.

http://www.choosehope.com/forum/viewtopic.php?id=11&p=1

 

Hi Debbi Jo,

It is my understanding that Mgus does not have symptoms.  

I was diagnosed with Mgus in April of 2007 after a routine physical exam.  My primary care decided to run blood tests based on my complaints of fatigue.

I had subsequent tests ordered by my oncologist, including an MRI of my spine, bone survey and bone marrow biopsy. Bottom line is the amount of abnormal protein is very small that it is undetectable.  I will require 3 month follow blood tests with my oncologist indefinitely to monitor these findings. 

What I decided is I will report any unusual symptom to my oncologist. There are symptoms that can be related to cancer but not always.  My oncologist is aware of my fatigue and his quest is to find out what is driving this fatigue.  The hope is and for all of us with Mgus is that it does not progress to cancer.  It is my understanding that 1% of patients a year with Mgus progress to Multiple Myeloma or other cancer. That is good statistic.   I understand your confusion regarding the symptoms you describe and if they are in fact related to Mgus.  I continue to feel fatigue, pain and also have run down flu like days.  I do believe, that there is something driving these symptoms, however I do understand that Mgus is not causing the symptoms. 

Take care of your self - Patti  

Yes I was just diagnosed with mgus after years of being tired and feeling like I had the flu. I am sure the medical community is missing something by saying this disorder has no symptorms. My stomach and digestion also give me fits. I wonder if anyone has ideas of what people like us could do to lessen symptoms.

If I eat no carbs, only meat and greens I feel much better, more enegy ...as I think the mgus may create an enviornment in the body that effects gut bacteria. I am committed to finding out what is up here and what to do to improve those with symptoms like mine..any one heard of anything that might help? Thanks, JW

 

On 4/17/2007 Debbie jo wrote:

I was recently diagnosed with mgus following several botts of "Flu's" which seem to last longer each time. the doctor said he was just taking the test to rule it out because everything they were testing for came out negative-however mgus camr back positive. now i dont understand something -everything i have read states mgus has no symptoms. i have pain, headaches, swelling at times and total fatique. my physican thinks these symptoms may be pscho-somatic. does anyone else have symptoms?

I have recently diagnosed with mgus and have had fatigue a good bit of the time.I also have had problems with constipation and my legs becoming numb. maybe,just maybe we know something the doctors do not. I have had a doctor tell me that maybe my symptoms are psycho somatic. So I reccomend that you do what I did and find another doctor .