Post bilateral mastectomy pain

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Post bilateral mastectomy pain

by Waquin on Sat May 05, 2007 12:00 AM

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I had a bilateral (double) mastectomy April 11, 2007. I had no pain whatsoever for the first nine days. On the ninth day, the surgeon removed my drain tubes. Then the fluid started building up in my chest wall around my incisions. And then, the pain started! I went and had the fluid aspirated from my chest. The pain has been relentless since then. I have folds of skin below my incisions, which are swollen and hard, and very painful!  This swelling continues over under my armpits. I tried the Darvocet that the surgeon gave me, but it made me sick, very nauseous and impaired my respiratory system ( I could hardly breathe). Does anyone have any suggestions? The pain is becoming unbearable. I don't sleep at night and I try to sleep during the day, without much success.

 

 

 

 

 

 

RE: Post bilateral mastectomy pain

by Sewwonderfulwoman on Sun May 06, 2007 12:00 AM

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On 5/5/2007 Waquin wrote:

I had a bilateral (double) mastectomy April 11, 2007. I had no pain whatsoever for the first nine days. On the ninth day, the surgeon removed my drain tubes. Then the fluid started building up in my chest wall around my incisions. And then, the pain started! I went and had the fluid aspirated from my chest. The pain has been relentless since then. I have folds of skin below my incisions, which are swollen and hard, and very painful!  This swelling continues over under my armpits. I tried the Darvocet that the surgeon gave me, but it made me sick, very nauseous and impaired my respiratory system ( I could hardly breathe). Does anyone have any suggestions? The pain is becoming unbearable. I don't sleep at night and I try to sleep during the day, without much success.

 

 

 

 

 

 


Hi Waquin,

You shouldn't have to suffer constant pain.  Please go back to your surgeon (be insistent with the front desk that you need to see the doctor NOW!) and very carefully articulate where it hurts, what's different from the 1st nine days, and how the pain is now constant.  There has to be something else they can give you for pain that you can tolerate.  It may be you need to have the fluid aspirated again but if not then ask your doctor if the swelling could be lymphedema as opposed to edema.  There is a special massage and bandaging that they can do to reduce swelling with lymphedema and the sooner you catch it the better.

Hope this helps.

RE: Post bilateral mastectomy pain

by Waquin on Sun May 06, 2007 12:00 AM

Quote | Reply

 

On 5/6/2007 Sewwonderfulwoman wrote:

 

On 5/5/2007 Waquin wrote:

I had a bilateral (double) mastectomy April 11, 2007. I had no pain whatsoever for the first nine days. On the ninth day, the surgeon removed my drain tubes. Then the fluid started building up in my chest wall around my incisions. And then, the pain started! I went and had the fluid aspirated from my chest. The pain has been relentless since then. I have folds of skin below my incisions, which are swollen and hard, and very painful!  This swelling continues over under my armpits. I tried the Darvocet that the surgeon gave me, but it made me sick, very nauseous and impaired my respiratory system ( I could hardly breathe). Does anyone have any suggestions? The pain is becoming unbearable. I don't sleep at night and I try to sleep during the day, without much success.

 

 

 

 

 

 


Hi Waquin,

You shouldn't have to suffer constant pain.  Please go back to your surgeon (be insistent with the front desk that you need to see the doctor NOW!) and very carefully articulate where it hurts, what's different from the 1st nine days, and how the pain is now constant.  There has to be something else they can give you for pain that you can tolerate.  It may be you need to have the fluid aspirated again but if not then ask your doctor if the swelling could be lymphedema as opposed to edema.  There is a special massage and bandaging that they can do to reduce swelling with lymphedema and the sooner you catch it the better.

Hope this helps.

Hello sewwonderfulwoman,

When I went back to have the have the excess fluid aspirated, the Dr.

said the folds of skin under my incisions was normal and the discomfort

was from the fact that the nerves were receiving a fresh blood supply from

the healing of my incisions.

I will try going back to him again and see if I can receive some help.

Thank you so much for your reply.

God Bless,

waquin

 

RE: Post bilateral mastectomy pain

by wmnak on Fri May 11, 2007 12:00 AM

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I'm SO Sorry for what you are going through!  I can only imagine ...  my left-only mastectomy was April 30th and my drains were removed May 7th.  Hopefully I'll get staples/stitches out on Monday - and the surgeon is concerned about swelling although I haven't had any (yet?)

Were you bound tightly during your surgery?  Apparently this is what helps control the swelling.  Mine stayed on 24/7 the entire first week, and now I take it off long enough to shower every second day.  I wonder if you are doing this, or if it would help?  Asperiating sounds like a painful experience, too.  Do hope you get this under control soon, we need to heal, not endure complications.   Good Luck!

Martha

RE: Post bilateral mastectomy pain

by Waquin on Sat May 12, 2007 12:00 AM

Quote | Reply

 

On 5/11/2007 Peter Pan wrote:

I'm SO Sorry for what you are going through!  I can only imagine ...  my left-only mastectomy was April 30th and my drains were removed May 7th.  Hopefully I'll get staples/stitches out on Monday - and the surgeon is concerned about swelling although I haven't had any (yet?)

Were you bound tightly during your surgery?  Apparently this is what helps control the swelling.  Mine stayed on 24/7 the entire first week, and now I take it off long enough to shower every second day.  I wonder if you are doing this, or if it would help?  Asperiating sounds like a painful experience, too.  Do hope you get this under control soon, we need to heal, not endure complications.   Good Luck!

Martha


Hi Martha,
Thank you so much  for replying to my message. No, I was not bound at all.
When I woke up, all I had on over my incisions were sterile dressings
and one strip of adhesive, which he removed the day he took my drains
out. They told me I could shower the day after my surgery. I was painted
with clear fluid like super glue which he peeled off the day he took my
dressings off.
 I have huge, large stitches across my
incisions, which he said will dissolve in time. My skin is all bunched up
with excess folds hanging down which are swelled. (So ugly!)
 But now, the swelling
is spreading over under my armpits and is very hard. When I asked
him about the swelling, the day he aspirated the fluid, he said that
was normal.
My husband said I should go back and see him. I said what good
would it do. The Dr. said this was normal.
You're the first person I've been able to talk to about this. I appreciate
your concern.
I'll be praying that you won't have any swelling after your sutures are
removed.
God Bless,
Jackie
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