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Two Pet Scans In 6 Mos?

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Subject: Two PET scans in 6 mos?
Date: 05/05/2007
My husband has incurable B-cell lymphoma, diagnosed 3 1/2 yrs ago at Stage III. The only treatment he's had thusfar was a round of Rituxin. The Rituxin ended a year ago; now the last PET (approx. Dec.) scan showed new growth in the nodes in his groin area. The dr wants to do another PET scan to "make sure" it's related to his lymphoma before he starts CHOP chemo therapy. Is this really necessary? It seems like his treatment is moving very slowly; could this be because his lymphoma is low-grade and the dr doesn't want to rush into chemo? Also, at the time of diagnosis (3 1/2 yrs ago), the dr's prognosis was that he would live 5 yrs. He's very tired in the afternoons and at night.  His immune system is shot because of either the cancer or the Rituxin so he has to have gammaglobulin infusions every four weeks. The dr says he will have to have these the rest of his life. I'm starting to think the dr was right about his 5 yr prediction and am getting nervous.  His nurse tells me she has seen people live with this type lymphoma until old age. Does anyone have any insight? Will he ever feel any better, or is he destined to be tired the rest of his life? Does anyone have any treatment ideas or opinions, Your opinions are appreciated.
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Patient
Luv4jesusanu
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Subject: RE: Two PET scans in 6 mos?
Date: 05/11/2007
  Pet scans are necessary. Like your husband. I was diagnosed 3 yrs ago with stage 4 follicular lymphoma (B-cell non-hodkims lymphoma).  Though I am a chrisatian and alot of prayer went up for me. Before rituxin treatment began. Several tumors just PHoofed aways. But now that I am just completed my 5th rituxin and chop treatments out of a scheduled 8. I am in stage 2-3 and have had some PTL amazing results. Which are totally unexpected. For I was loaded with tumoras all throughout my body.  Please dont give up. One never kn ows how long we have to live. Even if we are healthy. And people with this type of cancer can live for several yrs. I to get quite tired after my treatments. Am now receiving Neulasta injections after each treatment. I have to have Muga tests alont  with cat scans and pet scans. They are all beneficial to my physicians.  I am so thankful for not having all the side effects that can happen.  Justy keep the faith and I will remember you both in prayer. God Bless Carla
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