Primary Peritoneal Cancer

On 2/18/2008 movingforward wrote:

 Dear Lyn,

I am so sorry to hear about your mom's passing.  My prayer's are with you.  I just joined this sight and I am glad to help anyone I can, or at least support them.  My mom is 77 yrs old and was diagnosed with stage 3c june 07 and had a full hysterectomy, appendix out because it was coated with cancer as well as her omentum.  She was left with colon cancer(on top of the colon-peritoneal layer).  What was your mom's ca125 and staging at time of diagnosis?  My mom has a ca125 of 4025 b4 surgery, ca125 of 2012 after surgery and now after 8 chemo treatments and lots of healthy eating it is now at 7 in Feb 08.  She thinks positive and that really helps but I know the unfortunate reality of this sneaky disease that nobody has never really heard of b4.  Only 1 in 70 woman get it and it is a form of ovarian cancer; but as you know it is on top of the ovary and other organs to follow if it spreads.  I hope you are doing well and I am sure it will take you sometime to get over this.  I pray for your mom and you as well.  Take care.

Dear Lyn,

How are you holding up?  I am sure you are still feeling extremely sad, mad etc.  Just thinking of you..

Take care,

Can you send me your email address so that we can correspond?

On 2/21/2008 Maxalliemom wrote:

I'm so sorry to hear about your mother.  My 73 year old mother is going through a very similar situation.  She was diagnosed in Feb 2007 with ovarian but when they operated in March 2007,  they determined it was PPC instead.  They did a hsyterectomy but really couldn't do much else surgery wise as the cancer cells were all throughout her abdomen.  They did drain all the fluid and then she went through 6 rounds of Chemo (Carboplatin and Taxol)- once every three weeks.  That wrapped up in July and her CA 125 was down to 6 (it was around 700 when diagnosed).  They declared her in remission with regular follow up doctor visits.  She has been feeling great ever since and back to her very active lifestyle (hiking, kayaking, teaching yoga and cross country skiiing).  Although she was looking and feeling great, last month her CA 125 spiked up to 150 so they determined she was no longer in remission.  She started another bout of chemo last week.  This time they are giving her Doxil, which is a much stronger drug.  She is still feeling great, which is good, but we've been getting mixed reviews from her doctors.  One of them is concerned with the short remission period and told her she should expect 6-12 months.  The other said he thinks she can respond well and could have "years" left.  We are trying to remain positive and hopeful but also realistic.  At least for now she is feeling good so we are trying to make the most of the time we have.  There is no "cure" for this terrible disease but hopefully the chemo will help keep it at bay and give her some good quality time for awhile to come.  I pray the same for your mom.  Email me if you need to talk!

Please check Primary Peritoneal Cancer Recurrence from Xpress

My moms CA 125 was only ab out 300 after her surgery.  After her first rounds of chemo it got down to 9 but within a few months the cancer was back.  She did chemom until about 2 months before she died.  The doctors gave her 3-6 months and said there was nothing more they could do.  She was so weak!  Thanks foryour thoughts and prayers.

Lyn

Hi. I just found this site. My mom has ppc. She had exploratory lap about a month ago and has had a horrible time and chemo hasn't even started yet. Her blood pressure bottomed out, she got blood clots, she went home and her legs were real swollen and she could hardly get around. She needs someone to help her move 24/7.Anyways she's been vomiting since Friday and not just after she eats or drinks.  It will be that brown stuff from your stomach(sorry if tmi).  She was admitted to the hospital today for dehydration. Doc wants to build her back up and start her first chemo in the hospital.  I'm just frustrated. You can't find much about ppc on the net and what i find is pretty depressing.  Is it true her outlook could only be 12-25months?!?!?!?  I'm sorry to be rambling but I thought if anyone knows what I'm going through it would be ya'll.  Thanks for listening.  terri

On 2/21/2008 movingforward wrote:

I am so sorry to hear about your mom.  I am sure you had a hard time wrapping this type of rare cancer around your brain.  Is there a reason why the docs did not do a scan on your mom to determine if the cancer spread to other organs so that they would not be surprised when they opened her up and did the hysto?  My mom has one of the top docs in the state  ---he even determined the type of cancer she had b4 the results were in--good guess on his part--then he had her go and have ascites removed twice and also scans of the abdoman.  It is unfortunate that there are 3 docs who are giving you and your mom different answers.  I have not heard of that yet?  Then again I just joined this blog...  If the cancer did spread to her lungs, liver or any major functioning organ then I can see why one of the docs said a lesser time frame.  If not, I have learned through many resources that you mom can go on for 1,2-5-10 years.  It all depends on where her cancer currently is located.  Can you give me an idead of where it is now?  My mom had 8 chemo treatments because she was left with cancer on top of ***PPC*** her colon. It sounds like one of the doctors does not have a clue and the other doctor is still trying.  Please let me know where the cancer is located--we know that docs like to make $.  I do not want your mom in any more pain and you either.  She is a strong fighter-just like my mom!

Take care and keep in touch.......movingforward  (I am a female and I am probably around your age)