On 5/10/2007 Sandiharlo wrote:
My mom was recently diagnosed with a very rare mature teratoma with malignant transformation into squamous cell carcinoma. They have removed the tumor and are starting radiation and chemo next week. They will do 28 doses of radiation (daily for 5 weeks) along with Cisplatin once a week, then follow with another kind of chemo. Has anyone heard of this? Is there a place to research rare cancers? Has anyone else had this type of chemo and/or radiation? How bad were the side effects and what was life like while you were going through the treatment? Any information would be appreciated.
This is a little eerie. It describes my exact situation. I just finished a round of 25 radiation treatments and 4 weekly doses of cisplatin. THe docs are planning next steps. I would like to hear more about sandiharlo's mom's treatments.