reconstruction after anus is removed because of rectal cancer

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reconstruction after anus is removed because of rectal cancer

by Nanjvd on Fri May 11, 2007 12:00 AM

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Has anyone heard of a procedure where they reconstruction your intenstents to form a "new" anus for rectal cancer patients that have a permanent cologomasty bag.

 

thanks

RE: reconstruction after anus is removed because of rectal cancer

by Bmxspeedqueen on Fri May 11, 2007 12:00 AM

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I read about a docotor at Sloan-Kettering that is working on research but I havent heard anything for sure.  My hubby is having his anus removed in 2 weeks though so I am going to keep looking.  I do have a friend though that advised against it due to the fact that inorder to get anything artificial or transplanted you have to take antirejection meds which might not be great for a cancer survivor to take.  Have you had your anus removed?

Mel 

RE: reconstruction after anus is removed because of rectal cancer

by Bmxspeedqueen on Fri May 11, 2007 12:00 AM

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Here is the Dr I came across during my research http://www.mskcc.org/prg/prg/bios/355.cfm

RE: reconstruction after anus is removed because of rectal cancer

by wmnak on Fri May 11, 2007 12:00 AM

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I had anus and rectum removed Feb.2006, resulting in a permanent colostomy.  You'll find lots of information on reattachment or synthetic sphincters on the UOAA forum site (United Ostomy Assoc of America) and in the archives.  While I am not a candidate for this kind of procedure, it seems to have worked well for some - lots to consider. 

Good Luck!    Martha 

RE: reconstruction after anus is removed because of rectal cancer

by Bmxspeedqueen on Sat May 12, 2007 12:00 AM

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How come you are not a candidate if you don't mind me asking?  Is there something we should keep in mind or talk to the Dr about prior to my husband's removal? Thanks so much for referraal to that information . I will check it out.

Mel 

RE: reconstruction after anus is removed because of rectal cancer

by Bmxspeedqueen on Wed May 16, 2007 12:00 AM

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OMG thank you so much for mentioning this.  We are heading to Sloan Kettering on Monday.  I hadnt looked at the trials since early February and if it wasnt for this thread I might not have.  My hubby might have a chance at a more normal life.

 

Mel 

RE: reconstruction after anus is removed because of rectal cancer

by Bmxspeedqueen on Wed May 16, 2007 12:00 AM

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OMG thank you so much for mentioning this.  We are heading to Sloan Kettering on Monday.  I hadnt looked at the trials since early February and if it wasnt for this thread I might not have.  My hubby might have a chance at a more normal life.

 

Mel

RE: reconstruction after anus is removed because of rectal cancer

by Kenkd on Thu May 17, 2007 12:00 AM

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 I haven't heard of a procedure that exists as you define it but I know of some patients who have had reconstruction with what is left of the rectum ( if there is any left) and providing there is enough left.My doctor advised me since I was experiencing more 'liquid' stools than not ( in spite of my diet) that I would probably have the same problem if I were reconstructed ( and then the runny stool would pose a problem) Can anyone say "Diaper-time" It was probably better to collect this problematic waste in a bag than a diaper. He also said that since there was only about a thumbs length of rectum left it would prove to be a VERY difficult reconstruction if attempted which he strongly advised against. I originally looked forward to any reconstruction until I talked to this new surgeon ( the surgeon who did the resection retired this year). There was no mention of any other alternatives like rebuilding the anal canal, so I assumed that that was not an option, or at least one that I could afford.

So I have learned to accept it as it is. The good thing is I don't have to sit on toilets any more, and I save a little on toilet paper (although I use more paper towels) 

On 5/11/2007 Nanjvd wrote:

Has anyone heard of a procedure where they reconstruction your intenstents to form a "new" anus for rectal cancer patients that have a permanent cologomasty bag.

 

thanks


 

RE: reconstruction after anus is removed because of rectal cancer

by Mole815 on Thu Jun 21, 2007 12:00 AM

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hi my daughter has had reconstruction surgery to rebuild the holding area above the anus.  a plastic surgeon took a leg muscle up thru the inside and used it as a replacement for the area where they removed the Gist tumor.. she still has the illistomy bag because after 2 surgeries they havent been able to close the fissure because of the difficulty of the location. now we are also at a lost on how to procede

RE: reconstruction after anus is removed because of rectal cancer

by tkdutch on Sat Oct 11, 2008 12:00 AM

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On 5/16/2007 Bmxspeedqueen wrote:

OMG thank you so much for mentioning this.  We are heading to Sloan Kettering on Monday.  I hadnt looked at the trials since early February and if it wasnt for this thread I might not have.  My hubby might have a chance at a more normal life.

 

Mel 


Is there an update to Mel's question? I am very curious as to what happen afterwards.I had my anus removed and have a colostomy bag.I am under strict scrutiny by my doctors at the Cancer Center,Ongology Dept.and my family doctor.I get a checkup every  three months, CT Scans, x-rays and blood works.Having a Colostomy bag is better then the alternative I think and you can still have a normal live.My surgeon told us before the operation it could never be reversed because it was only 1/2' from the exit.I hope this info will help some.            Dutch

Dutch

 

 

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