Leiomyosarcoma Metastized to The Lung

Hi Sharon,
So pleased to read of your success in fighting LM. My brother-in-law was diagnosed about 2 weeks ago. He has LM prominent on his liver and in his lungs -- similar I think of what you initially discovered.

We are fortunate that he will be cared for at Dana Farber -- a wonderful cancer center with an excellent sarcoma team.

He is scheduled for a regimen of chemo (not sure what drug)--three days each treatment, followed by 3 weeks off then repeat for a total of six sessions. No discussion of surgery yet --but I am presuming that would follow a successful response to chemo.

Can you tell me anything of your treatment and what we as family might expect over this period.

Yes we do have lots of prayers being offered.

Thank you and best wished for continued recovery.

Herb D

Hi,
It’s me Sharon. They used MAID.
I did tolerate well because they used fractionated dosages. They also monitor me daily to make sure I was getting plenty.

I received the chemo for 4 days then came back every 28 days for treatment for 5 months straight. I was in constant touch with the naturopathic medicines. They helped with all kids of food issues that I never lost weight I gained.

I hope I can help ask Jesus for the strength and rebuke Satan because all illness comes from Satan.

Take care and God Bless,
Sharon M.

Lori,
My tumor was tested for hormone receptors during my last surgery. It came back progesterone positive.

Hello
I just found this message board and need some help. My lms was on the pancreas and then went to the lungs [both] I had surgery for the pancreas and now they want to remove the upper lobe of my left lung, then go back in and do the
Right lung. I am going to Stanford medical center and have a team of doctors working together along with a sarcoma specialist. I am seeing a nutritionist and my family doctor is helping me sort through things. Any suggestions out there. I will be starting radiation of the pancreas after the lung surgery. What a roller coaster ride this has been. It was found in march, first surgery in may and the next scheduled for sept.
Any info would be helpful.

Dear Princess3,

Thank you for sharing your story! My mother is 59 years old with a leiomyosarcoma on her liver that has metastasized to her lungs. She is currently on hospice, because she had such a horrible experience on chemotherapy with little to no change in her condition. We are currently seeking other treatment options, because she is on lots of pain medications that are not providing comfort and relief at this time. Do you know of any other treatment options or resources that we need to research?

Yours sincerely,

MommyJ

My mother has this type of cancer and she just found out it spread to her lungs from her leg and abdomen. She has been on chemo for a year in hopes of shrinking it and that doesnt seem to have helped. She had one tumor removed 3 years ago with 38 radiation treatments to the site and a 5% chance of recurrence, which it has aggressively.
What type of chemo or radiation was your husband on. So far they have just told her so sorry, nothing we can do. They want to leave her on large amounts of pain meds which only allow her to sleep and dont do much for the pain. Your story gives me hope. Buttercup.

Hi Buttercup,

In response to your question regarding my husband's chemotherapy...He received Gemzar alone for one dose,then a combination of Gemzar and Taxotere the next with a week off in between. Then the regimen would be repeated. This occured from September 2003 until the end of April 2004.

So far,from the postings I've read, nobody else has gotten this chemo combination. He did lose his hair, had a lot of fatigue,chills,sweats,etc but little or no nausea. I guess the stuff was pretty strong since they would give him something to prevent an allergic reaction before each dose.He just had his latest scan about a month ago and is still cancer-free. It has been a year and a half since the surgery with Dr. Sugarbaker. At our last visit with him, he suggested that my husband consider jogging since he is in such great shape!

Maybe you could mention this to your doctors. Perhaps they could talk to Dr. Jeff Morgan at Dana Farber.I pray that this has been helpful information for you.

God bless you in your struggle.

Mary G.

Hello Mary G,

My daughter Kelly, age 38, was diagnosed in July '05 with stage IV Leiomyosarcoma with metastes to the lungs and bone. She is also on Gemzar and Taxotere using M D Anderson's protocol in Houston, Tx. The Taxotere is very hard on her system. We have had her on Coral Calcium since September, and she feels it is quite helpful. We are just starting her on liquid minerals and Essiac tea. Does anyone have any miracle alternatives they have found?
The sarcoma doctors have given us an early terminal diagnosis, but we do believe in God's healing and prayers if it be his will.

I was diagnosed with Leiomysarcoma of the Uteris in May of '04. I went through 6 treatments of Gemzar and Taxotere and 28 external and 3 internal radiation treatments. My treatment ended on 11/30/04 and my CAT scans had been clear until 9/2/05 of this year. Two nodules showed up on my right lung so my oncologist wanted to do another one in November so I had it on 11/4/05 and that one showed I now had 5 nodules on my right lung!!! I had 2 second opinions which were both very different and I'm so confused. I start chemo again on December 5, 2005 and I feel like all I can do is pray that I picked the right second opinion. My current oncologist is of no help to me whatsoever. When he gave me the news of my 5 tumors, I said, "my God Dr. Lawler, am I going to die from this?" and he said, "Seems to be a good chance that may happen." I could have killed him for that. The 2 sarcoma specialists who gave me the second opinions seemed to be more hopeful, but their recommendations were so different from each other. I'm so scared, I don't want to die. I am scared, angry, confused, frustrated and I could use any and all suggestions, prayers, thoughts, etc. Thank you all for reading my e-mail.

Hi. My name is trish. I just read your
message on cancercompass.com. My mom
also diagnosed with Leiomyosarcoma this
year. She was put on chemotherapy but the
doctor said it just temporaly and her life won't
last long. I want to her to try the Gleevec. Can
you show me how do your mother in law get
that medicine from doctor and did she had
surgery to remove the tumor before she was
put on Gleevec ? I hope you have time to
reponse to my message as soon as you can.
Thanks.
trish