bone pain from chemo?

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bone pain from chemo?

by Dothedewmom on Thu May 17, 2007 12:00 AM

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Hello all,

 I have posted several messages on here before and have always gotten some great advice. Now I turn to you all again. My mother has NSCLC stage 4  with several mets. Anyway she is taking Taxol/Avastin/Carboplatin for her chemo. The past week she has been having some terrible bone pain. She says sometimes it feels like her bones are breaking. I have read and reread the info on these chemos and none of them say anything about bone pain. I can not call her doctor because I am not on her medical release form so they will not give me any information and she doesn't want to call because she goes next Wednesday for another PET scan. She feels like she is a bother to her doctors. I tell her that if her insurance is paying these doctors $14,000 for each chemo treatment then she is surely not a bother. Anyway I just wanted to know if anyone else has dealt with the bone pain before. Her doctor's have already changed her pain medicine to Oxycotin. Sometimes it helps sometimes it doesn't. I hope someone can give us some advice. Thanks ahead of time and God bless all who are fighting this terrible disease.

RE: bone pain from chemo?

by Pbj11 on Thu May 17, 2007 12:00 AM

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Although bone pain has not been our experience, there are many who DO have all kinds of pain from chemo.

I don't know when her last chemo was, but the pain from each cycle usually diminishes the farther away from the chemo you get.

I'm sure others will be around to comment who have had this experience.

Best wishes.

RE: bone pain from chemo?

by Dothedewmom on Thu May 17, 2007 12:00 AM

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Thank you for your response. It has been almost 2 weeks since her chemo treatment. This pain wasn't present in the last round. Of course everytime something new shows up then we are scared it's a sign that the cancer has gotten worse.  I will keep checking back and hopefully someone will be able to shed some light on this. She hurts so badly I hate to see her like this.

RE: bone pain from chemo?

by Pbj11 on Thu May 17, 2007 12:00 AM

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This much I do know -- each chemo cycle the reaction can be different from another one.  Sometimes we see fevers and sweats, but other times nothing.   It's a weird little fact of life with chemo.

 I know how that fear of anything different can throw everyone into a panic.  Been there, done that -- so completely understand how you are feeling.

Did your Mom have Neulasta or Procrit following this cycle or anything different from the last cycle?  Those are also known to cause additional aches and pains.

Hope this helps a bit.

 

RE: bone pain from chemo?

by Taindee on Fri May 18, 2007 12:00 AM

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On 5/17/2007 Dothedewmom wrote:

Hello all,

 I have posted several messages on here before and have always gotten some great advice. Now I turn to you all again. My mother has NSCLC stage 4  with several mets. Anyway she is taking Taxol/Avastin/Carboplatin for her chemo. The past week she has been having some terrible bone pain. She says sometimes it feels like her bones are breaking. I have read and reread the info on these chemos and none of them say anything about bone pain. I can not call her doctor because I am not on her medical release form so they will not give me any information and she doesn't want to call because she goes next Wednesday for another PET scan. She feels like she is a bother to her doctors. I tell her that if her insurance is paying these doctors $14,000 for each chemo treatment then she is surely not a bother. Anyway I just wanted to know if anyone else has dealt with the bone pain before. Her doctor's have already changed her pain medicine to Oxycotin. Sometimes it helps sometimes it doesn't. I hope someone can give us some advice. Thanks ahead of time and God bless all who are fighting this terrible disease.


 

The best information I've found for this is at cancercare.org. They will send you information on any topic to your home that you request. I have NSCLC and I'm in my 30s. It is can be quite painful, especially that particular regimine. I'm on my 4th round of chemotherapy. The one your loved one is going through was my first experience with chemo and those chemicals are very hard. She needs to tell her doctor, anything and everything, that is hurting or bothering her. She is paying for the service, and doctors, especially oncology doctors, do not like to hear that their patients are in pain. They want to control that pain and make the experience as less stressful and as easy as possible.

 When I switched to my 2nd round of chemo, I had some symptoms that I didn't tell my doctor about and it almost cost me my life. My cell counts got too low and I developed a staph infection. I was new to the experience so I didn't think it was anything out of the ordinary. I had to learn the hard way to make sure I vocalized to my oncologist what was going on with me. It is good to keep a "pain" diary when you have pain what kind on a 1 to 10 scale, how long it lasted and where.

Bone pain is the worst pain a person can experience going through cancer, I think, beside the neuropathy. The website below might help too. But the only thing that really works for me is the pain management plan I take for the pain in my bones. I used to take loritab but now I am on a small dose of morphine. It keeps my pain in check, and if I have a sharp spike in pain, I also have a small dose that gets me through that spike, so I am at least comfortable. My doctor has asked me several times, "How much pain medication is too much?" He said it is however much you need not to be in pain. Some of folks I now like to use Fentanyl patches too. There are a lot of slow releasing pain meds that will help her feel a lot better. However, with this you can easily get constipated, so eat lots of fiber and if you still can't go, I recommend Miralax. It used to be a prescription only drug, but has now gone OTC. Its tasteless and you can mix it in anything. I usually drink a glass of this everyday and it works for me.

http://www.cancercare.org/pdf/booklets/ccc_lung_bone_care.pd

http://www.healthtalk.com/lungcancer/programs/16_480/index.c

 

RE: bone pain from chemo?

by Jbloodw on Fri May 18, 2007 12:00 AM

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On 5/18/2007 Taindee wrote:

 

On 5/17/2007 Dothedewmom wrote:

Hello all,

 I have posted several messages on here before and have always gotten some great advice. Now I turn to you all again. My mother has NSCLC stage 4  with several mets. Anyway she is taking Taxol/Avastin/Carboplatin for her chemo. The past week she has been having some terrible bone pain. She says sometimes it feels like her bones are breaking. I have read and reread the info on these chemos and none of them say anything about bone pain. I can not call her doctor because I am not on her medical release form so they will not give me any information and she doesn't want to call because she goes next Wednesday for another PET scan. She feels like she is a bother to her doctors. I tell her that if her insurance is paying these doctors $14,000 for each chemo treatment then she is surely not a bother. Anyway I just wanted to know if anyone else has dealt with the bone pain before. Her doctor's have already changed her pain medicine to Oxycotin. Sometimes it helps sometimes it doesn't. I hope someone can give us some advice. Thanks ahead of time and God bless all who are fighting this terrible disease.


 

The best information I've found for this is at cancercare.org. They will send you information on any topic to your home that you request. I have NSCLC and I'm in my 30s. It is can be quite painful, especially that particular regimine. I'm on my 4th round of chemotherapy. The one your loved one is going through was my first experience with chemo and those chemicals are very hard. She needs to tell her doctor, anything and everything, that is hurting or bothering her. She is paying for the service, and doctors, especially oncology doctors, do not like to hear that their patients are in pain. They want to control that pain and make the experience as less stressful and as easy as possible.

 When I switched to my 2nd round of chemo, I had some symptoms that I didn't tell my doctor about and it almost cost me my life. My cell counts got too low and I developed a staph infection. I was new to the experience so I didn't think it was anything out of the ordinary. I had to learn the hard way to make sure I vocalized to my oncologist what was going on with me. It is good to keep a "pain" diary when you have pain what kind on a 1 to 10 scale, how long it lasted and where.

Bone pain is the worst pain a person can experience going through cancer, I think, beside the neuropathy. The website below might help too. But the only thing that really works for me is the pain management plan I take for the pain in my bones. I used to take loritab but now I am on a small dose of morphine. It keeps my pain in check, and if I have a sharp spike in pain, I also have a small dose that gets me through that spike, so I am at least comfortable. My doctor has asked me several times, "How much pain medication is too much?" He said it is however much you need not to be in pain. Some of folks I now like to use Fentanyl patches too. There are a lot of slow releasing pain meds that will help her feel a lot better. However, with this you can easily get constipated, so eat lots of fiber and if you still can't go, I recommend Miralax. It used to be a prescription only drug, but has now gone OTC. Its tasteless and you can mix it in anything. I usually drink a glass of this everyday and it works for me.

http://www.cancercare.org/pdf/booklets/ccc_lung_bone_care.pd

http://www.healthtalk.com/lungcancer/programs/16_480/index.c

 


 

I take ifosfamide chemo and have so far completed 4 weeks in 2007 and 8 weeks in 2006 with anothet two weeks scheduled in June. I am 74 years old with soft tissue sarcoma that metastisized to the lungs. Each cycle consists of 5 full days of chemo folowwed by two of recuperation prior to the next cycle. In my case on day 10 or 11 the chemo reaches the bone marrow and causes much pain. I have learned to take hydrocodone pain medicine which usually eliminates the pain within 20-30 minutes. I continue taking pain medicine for about two days as the chemo effect diminishes and do fine. My oncologist indicates this is a normal occurrence.

Hopefully similar relief can be found in your case.

RE: bone pain from chemo?

by Momscaregiver on Sat May 19, 2007 12:00 AM

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First and foremost, my thoughts and prayers are with you, your mother and your family. 

My mother had experience with bone pain and did not mention it to her oncologist until she went in for her second chemo treatment.  He was very upset with her and he stated that she should call whenever her pain got worse and that he would adjust her medications accordingly to provide her comfort.  In my mother's situation, she had mets in her spine which were growing and she ended up with a compression fracture in her vertebrae.  I feel that if she had been more open with her oncologist when the pain first started getting worse they might have started radiation on her mets before the fracture happened. 

I can't stress enough that open communication with her oncologist is very important in the battle of the disease as well as any pain. 

 

RE: bone pain from chemo?

by Curemom on Tue May 22, 2007 12:00 AM

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My mom also has the bone pain.  From what my mom tells me it lasts about 3 days. 

 She did say that its very very painful, but she knows its going to go away.  My mom who is in her 4th out of 6th treatment finally asked for some pain killers and got oxycotin.  My mom only takes it if the pain is really bad, but she did note that the pain goes away "for a while".

Don't be afraid to ask the doctor for pain killers, going through chemo is no walk in the park.  If there are ways to make the experience more comfortable don't hesitate in acting.

There was a post within this thread that discussed bothering your doctor.  First let me say this, you should bother your doctor whenever needed, but don't short change the medical staff including the RN's.  The RN's know their stuff and can usually deliver (get back to you) quicker than the doctors.  With my mom's treatment, I find myself turning to the nurses for lots of advice.   I find that  Doctors are good with scans, treatement options, etc... etc...  The nurses are good on subjects of comfort and how you feel.  Sometimes its best to go up the ladder.

 

 

RE: bone pain from chemo?

by Dothedewmom on Tue May 22, 2007 12:00 AM

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Thanks to everyone who has responded my post. It's nice to know that my mom isn't alone in her pain. With my mom and her pain it usually starts off gradual and then hits full force. She is unfortunate in that her pain last about a week or so and never really seems to go away completely. She was supposed to go for another PET scan tomorrow but her insurance is refusing to pay for it because it's been less than 60 days since her last scan.so now we sit and wait and see what her doctor can do. Again thanks to everyone and God bless all who are fighting this terrible fight.

RE: bone pain from chemo?

by Wondyphill on Sat Jun 28, 2008 12:00 AM

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On 5/17/2007 Dothedewmom wrote:

Hello all,

 I have posted several messages on here before and have always gotten some great advice. Now I turn to you all again. My mother has NSCLC stage 4  with several mets. Anyway she is taking Taxol/Avastin/Carboplatin for her chemo. The past week she has been having some terrible bone pain. She says sometimes it feels like her bones are breaking. I have read and reread the info on these chemos and none of them say anything about bone pain. I can not call her doctor because I am not on her medical release form so they will not give me any information and she doesn't want to call because she goes next Wednesday for another PET scan. She feels like she is a bother to her doctors. I tell her that if her insurance is paying these doctors $14,000 for each chemo treatment then she is surely not a bother. Anyway I just wanted to know if anyone else has dealt with the bone pain before. Her doctor's have already changed her pain medicine to Oxycotin. Sometimes it helps sometimes it doesn't. I hope someone can give us some advice. Thanks ahead of time and God bless all who are fighting this terrible disease.


I too am receiving Taxol and Carboplatin, but mine is for Ovarian cancer.  I always have deep bone pain following my chemo treatments.  I have a friend who went though the same treatments 5 years ago and warned me about the bone pain.  I use a good pain reliever until it subsides.  I know this is not an uncommon problem.  I definitely understand how much it hurts.

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