Mantle Cell Lymphoma (Mcl)

Diagnosed Jan 2002 - trials - chop/vaccine trial,
genesence seem to control nodes. Have
stomach discomfort and some nausea - would like to hear from others with MCL.

My mother was dx with MCL 28/11/2005 in Egypt, and she completed 2 R-CHOP cycles, will do CT after third and PET after fourth cycles to reevaluate case. Plan is to go thru 8 cycles R-CHOP then R-maintenance afterwards.

no initial bone marrow or blood presence, performance status acceptable with mild fatigue due to chemo and Rituxan.

Besides the normal conventional therapy (chemo),should we enlist in clinical trials and should we explore 'The Issels Treatment' if Bupa healthcare covers it? Please advise.

 

On 7/14/2004 Morton wrote:

Diagnosed Jan 2002 - trials - chop/vaccine trial, genesence seem to control nodes. Have stomach discomfort and some nausea - would like to hear from others with MCL.

Morton,

Just wanted to check in and see how you are doing since DX in2002?

My DX in 1/06 went through 6 R-CHOP, 18 months post Stem Cell Transplant, 3rd round of maintenance (Rituxan) 1 left in 6 months.

Hope you are doing well. Keep in touch!

God Bless,

Kathy in Va  :)