Hi all. since my last posting we have been having a lot more attention and are being seen by several consultants. My husbands mobility has worsened and he now has a wheelchair as he is limited to walking more than 25 yds. After researching on the internet i asked 2 of the consultants if he could have POEMS sydrome another rare disease. He has the P and the M and also the castlemans which after reading are connected with this condition. After another CT Scan his lymph glands have got bigger but the chemotherapy he had in 1993 did not touch these we have now been told and Radiotherapy worked better. We have been told he can only have one more treatment of radiotherapy and the consultant wants to hold back with that at the moment. He is being monitored a lot more closely and our Heamatologist is consulting with others as to other forms of treatment. Meanwhile he is taking steroids for the periphial neuropathy hoping this will stem the damage to the nerves. His protein level is not too high at the moment and he is feeling quite well in himself. I found the information on POEMS sydrome from the Rare diseases database. As castlemans is also on their. Hope all of you who have responded to the previous messages keep your spirits up. Please keep us posted of any new developments. Also keep asking the questions to your consultants. Research yourself so you know what to ask. I am in a lot better frame of mind now. God bless you all.