Mgus

Hi  to everyone who has MGUS

I was diagnosed approximately 5 years ago. I am now 59 years old. I have been through the testing, bone marrow biopsies, and the fear.  Today I have an appointment to find out what is causing my lymph nodes to become inflamed and painful.  I pray it has nothing to do with MGUS.  I would love to hear from others with this precursor to MM. 

I was just diagnosed with this last week at mayo.  My lymph nodes are enlarged but not painfull.  I hope all went well with your appt.  I was wondering what kind of symptoms people have with this.  I'm 37 and have always been in good shape.  I am a high voltage lineman and haven't been able to go to work for several months.  I have a tremendous amount of nausea and pain in my stomach,  some pins in my left hand, and fatigue.  The Doc's say it may go away, then again they haven't been batting 1000 either.  Is there anything I could be doing to treat the symptoms?  I can deal with the MGUS,  I just need to treat the symptoms so I can return to work.  Any help would be appreciated.

 

On 6/15/2007 Jadegirl wrote:

Hi  to everyone who has MGUS

I was diagnosed approximately 5 years ago. I am now 59 years old. I have been through the testing, bone marrow biopsies, and the fear.  Today I have an appointment to find out what is causing my lymph nodes to become inflamed and painful.  I pray it has nothing to do with MGUS.  I would love to hear from others with this precursor to MM. 

Hello, I also have been diagnosed with Mgus 1 1/2 years ago. I am 45 and also have inflamed and painfull lymph nodes that come and go. I have fatique, low grade temps and bone pain and bleeding issures which one doctor called it aquired von willebrand, another doctor called it inhibator. Had bone marrow biopsy and xray of only back and pelvis. My bone pain in mostly in my upper arms, ribs and just last week I was doing my regular walks and I think I got a small fracture in my lower leg. I don't tend to go to doctor anymore because I have not a good luck with them. Hope your appointment goes well and let me know what they say about your lymph nodes. What other symptoms do you have?

 

On 6/25/2007 Majolica wrote:

 

On 6/15/2007 Jadegirl wrote:

Hi  to everyone who has MGUS

I was diagnosed approximately 5 years ago. I am now 59 years old. I have been through the testing, bone marrow biopsies, and the fear.  Today I have an appointment to find out what is causing my lymph nodes to become inflamed and painful.  I pray it has nothing to do with MGUS.  I would love to hear from others with this precursor to MM. 

I would ask for a second opinionHello, I also have been diagnosed with Mgus 1 1/2 years ago. I am 45 and also have inflamed and painfull lymph nodes that come and go. I have fatique, low grade temps and bone pain and bleeding issures which one doctor called it aquired von willebrand, another doctor called it inhibator. Had bone marrow biopsy and xray of only back and pelvis. My bone pain in mostly in my upper arms, ribs and just last week I was doing my regular walks and I think I got a small fracture in my lower leg. I don't tend to go to doctor anymore because I have not a good luck with them. Hope your appointment goes well and let me know what they say about your lymph nodes. What other symptoms do you have?

I would ask for a second opinion if you are not happy with your doctor and insist you want answers. Do as much research as you can from the various web sites and then you ask the questions they tend to goive you more answers if they think you know what you are talking about. It is important that you keep on with your check ups.

Please dont give up just demand to see another doctor.

 

Hello.  I'm 34 yrs old and they are telling me I probably have MGUS.  I recently was tested for autoimmune diseases because the SED rate (inflammation levels) in my body are way too high and have been that way for years.  Upon investigating, they found a poorly defined band in the serum and urine (something about a M-Protein) and it's reactive with IGG and IGA (whatever that means).  They sent me to a Heamatologist/Oncologist and they are doing more blood work along with a 24 hr urinalysis.  Can anyone give me more insight to this issue.  I'm 34 with two children (4 and 2) and my two year isn't in good health himself.  So, as you can tell I'm scared because I want to be healthy to take care of my kids.  I also have soft tissue rheumatism.