Good News!

In 5/04 I was diagnosed with bile duct cancer; advised by prominent doctor in Boston that it was not resectable. However, I found a wonderful surgeon at Lahey Clinic in Burlington who did the resection - taking 3/4 of my liver and revamping my insides!  Was able to go back to work within 3 months and then had a recurrence in 1/06 down by the pancreas.  The same surgeon did a modified whipple and once again I was able to go back to work within three months.  I have had no chemo or radiation and just recently had my first CT scan that showed no words: recurrence or cholangiocarcinoma.  I am 56 years old and hoping that my words of good news will inspire many.  I did not think I would live past 53 and I am truly grateful for the additional 3 years and I am looking forward to many more.  My prayers are with all of you who are going through this.  Please feel free to contact me.

Sue

Hey Sue,

I am very happy for you.  Keep it up.  My husband had a cholangiocarcinoma liver.  I am crossing my fingers that no cancer will ever return.  I am looking for good news like the one from you to build my hope up for my husbankd.  Thanks.

On 6/19/2007 Suzieb wrote:

In 5/04 I was diagnosed with bile duct cancer; advised by prominent doctor in Boston that it was not resectable. However, I found a wonderful surgeon at Lahey Clinic in Burlington who did the resection - taking 3/4 of my liver and revamping my insides!  Was able to go back to work within 3 months and then had a recurrence in 1/06 down by the pancreas.  The same surgeon did a modified whipple and once again I was able to go back to work within three months.  I have had no chemo or radiation and just recently had my first CT scan that showed no words: recurrence or cholangiocarcinoma.  I am 56 years old and hoping that my words of good news will inspire many.  I did not think I would live past 53 and I am truly grateful for the additional 3 years and I am looking forward to many more.  My prayers are with all of you who are going through this.  Please feel free to contact me.

Sue

Congratulations. I am very happy for you. My husband has the same cancer and we are told his liver is too far infected to operate. I am very happy to discover that not everything is hopeless. I sincerely wish you a long and healthy life.

Iris.

Iris:

I am sorry about your husband.  I hope you have truly exhausted your search for help.  I know there is a pill out for liver cancer now and that maybe if the liver tumor shrinks enough, he might be able to have surgery.  Not know where you live, I don't know if you have checked out Dr. Roger Jenkins at Lahey Clinic in Burlington, MA.  He is fantastic and if it can be done, he will do it. 

Please keep me posted.  I will add your family to my prayers. 

Always

Sue

T&T

  Did he have resection done and if so when?  Since mine was only in the bile duct and not yet into the liver...it was slightly different.  How old is your husband?

Is he having to do any chemo or radiation? 

 I will certainly pray that your husband continues to do well.

My best wishes,

Sue

Hey Sue,

Sorry I was not back to this website since last time I sent you an email.  My husband had a liver resection last year and has been doing well since then.  Of course, he is so afraid of facing a cancer recurrence.  He has been going to an oncologist to continue monitoring his liver condition.  He was just through another scan last Monday.  He and I are waiting for the test's result.  Love, T.

Dear Sue,

A firend of ours is about to undergo a liver transplant at Mayo.  He is going to get a live liver donor.  they are doing this for patients who dont have any spread of the disease and theres a good chance for a cure I understand.  Just FYI  hang in there.

Sue,

A survivor!  I am blown away by your message to us all with bile duct cancer. 

3 years!  Keep us all posted please.  I need to read more messages like this one.

pamngreenvillesc

Hi,

If I can help in anyway, please let me know.  Are you a survivor or what is happening in your life?  I know you are a patient - when diagnosed?  What has happened so far, if you don't mind my asking.

Sue