One patient with glioblastoma still alive nine years later
by Jeanc on Wed Jun 20, 2007 12:00 AM
my mom has advance lung cancer and been doing treatments for 1 yr. now, but lately she doesn't feel like eating at all, we have tried megestrol acet, and it doesn't help. has anyone try Apazin, or have anyother suggestions. She also taken Benecalorie to help keep some wt. on but she is so weak, and dizzles alot. Her chemo is Gemzar & Avastin. Please keep mom Jean in your prayers
by cj_Hope on Thu Jun 21, 2007 12:00 AM
The supplement zinc sulphate (or sulfate in US!) has been shown to maintain and improve appetite and/or slow weight loss. Also, it may be worth looking into Hydrazine sulphate which could really help with cachexia. If you type
into goo gle, and click on the first link, it will tell you more. Hope this helps
by Franklin_Nyu_Tisch on Thu Jun 21, 2007 12:00 AM
There's a product by New Jersey company www.controlledlabs.com (that is worth sharing what I know about it),
that stimulates the appetite and avoids controversy as far as I know, enjoying a favorable reputation. It has an odd name... which is a cosmic euphemism for the empty stomach dynamically drawing-forth-a-new surging-appetite, for it is called "Black Hole". Just the way a black hole sucks objects into itself at a huge rate of speed.
It has all natural ingredients and therefore is available without a prescription. However it is not cheap, so for those who favor insurance to cover costs, I doubt any insurance company would cover "Black Hole" yet; it is purely for the out-of-pocket & it's OTC as it is classified as a nutritional supplement, aimed at body-builders who want to increase their appetite, to increase their caloric intake, to build larger muscle mass.
It is, therefore, non-risky and this is why I am suggesting it without reservation to try at least once. The designers / chemists correctly identified (and mimicked) the hunger-producing alkaloids in Marijuana and found that the old natural antibiotic herbal (the Native Indians used) to boost the immune system in the USA called Echinasia contained almost chemically identical hunger-producing alkaloids (but of course, without producing the forgetfulness and without producing the noted Marijuana euphoria!). They then extracted these from Echinasia and standardized them so that they are stable and each pill's value are consistent. This is why it is somewhat pricey; but what isn't that is extracted and standardized in a laboratory? There is no side-effects supposedly save for the hunger producing state. You can read about it more through Google or go to Contolled Labs website and then find "Black Hole". I recommend you do both. You can find it at high end vitamin and sports nutrition stores (Vitamin World, Vitamin Shoppe, two national chains that carry it). 90 capsules are about $50. There is a discounter online.. I found today for 90 capsules for $25 plus shipping:
Hope this helps, Maureen and Jean. [I often have a low appetite; I usually feel as though I was born without an appetite; so naturally this subject interested me.]
On 6/20/2007 Jeanc wrote:my mom has advance lung cancer and been doing treatments for 1 yr. now, but lately she doesn't feel like eating at all, we have tried megestrol acet, and it doesn't help. has anyone try Apazin, or have anyother suggestions. She also taken Benecalorie to help keep some wt. on but she is so weak, and dizzles alot. Her chemo is Gemzar & Avastin. Please keep mom Jean in your prayers Daughter Maureen
by Lauri on Tue Jun 26, 2007 12:00 AM
by Jenniferc on Tue Jun 26, 2007 12:00 AM
by ProudGrandpa on Tue Jun 26, 2007 12:00 AM
I don't really have any good advice for your mother's appetite issue, but would like to comment that since my chemo I went from 200 pounds to 150 pounds and now that I am eating better I still cannot regain any weight. I eat ice cream, cinnamon rolls, etc., but can't seem to gain back any of my weight. Of course, I am enjoying eating more until my next round of chemo starts next week. May God bless you and your family during these difficult times. I always say that I don't know what tomorrow may bring, but my Lord does. Richard
by MrsAl on Tue Nov 06, 2007 12:00 AM
by wewillbeatthis on Sun Nov 25, 2007 12:00 AM
my mom is one year out also. stage 4 non small cell adenocarcenoma spread to bone and brain. She is on Gemzar now as 4th line of defense. Can not do Avastin because she has had a brain tumor. She has been on several other chemos as well as radiation and the Tarceva pill.
Have her take acedopholis (sp?) kept in cold sect. at health food store. The chemo kills the good bacteria in stomach that takes the nutrients out of the food you eat. When you are eating little amounts of food and you do not have this bacteria in you to assit then you get even less of the nutrients you would other wise. Drinking lots of boost helps. you can add it to ice cream. Also add to food or drink a powder high in protien. at health food store it is called WHEY. mom did that also... she also kept ice in her mouth the entire time she gets the chemo to freeze the mouth cells so that they do not get burned as bad by the chemo. when your mouth hurts you really dont feel like eating or drinking...
do not know if you are open to this but her primary dr. perscribed a legal pill form of hemp. do not know the name of it but it is essential marajuana in a pill that does not make you high... what it does do is stop nausea and makes your appetite increase.
hope that helps. May God Bless her!
When you track a discussion, you will get notified by e-mail if anyone else posts a new message on this discussion. Are you sure you want to track this discussion?
If you stop tracking this discussion, you will no longer get notified by e-mail if anyone else posts a new message on this discussion. Are you sure you want to stop tracking this discussion?
If you were considering traveling for cancer treatment, which headline would you find more interesting?
Destination: HOPE. Cancer care that is worth the trip.
Over 84% of our patients travel to our hospital from another state
Neither headline is interesting
We care about your feedback. Let us know how we can improve your CancerCompass experience.