Hello,
I have been seeing oncologists for about 4-5 years now because I had pains in my legs and didn't know why. One of the many doctors I was referred to told me I had too much protein in my blood and I should see an oncologist. I did and all I was told was to come in every 3 months so we could keep an eye on my protein levels and that "one day" I could have a problem. So I did as I was told pretty much thinking that I "might" be a canditate for some type of bone cancer down the road. Three years ago my husband and I moved to another city and I changed doctors to be closer to my home and just 2 months ago he mentions how great it is that I have multiple myeloma and that when it's time for treatment there is a good hospital in Arkansas or I could consider M D Anderson. Well, I have to tell you it was like a slap in the face.......he said that I do have the disease but that it is smoldering right now. That's why it's important that I get checked every 3 months. He also told me they usually don't see this disease in someone as young as I am. I am 53. I have another appt in July which my husband is coming with me so we can get much more info on this. I am also wondering if I should look into an appt with one of these other cancer treatment centers to get a second opinion and possibly some kind of nutritional treatment or vitamins. I have been told to just do what I have been doing. I'm pretty confused right now and more than a little afraid. Any info would be appreciated. Also is mutiple myeloma also called lymphoma? And what is CLL? Thanks for any info. Paula :)