On 6/24/2007
Thickmadame wrote:
HI, THIS IS MY FIRST TIME ON THIS WEBSITE BUT SO FAR I LIKE WHAT I SEE AND IT'S TO FEEL THAT WE ARE NOT ALONE..ANYWAYS MY HUSBAND HAS JUST BEEN DIAGNOSED WITH RECTAL CANCER IN 01/07 AND HE HAD TREATMENT BEFORE SURGERY BOY WAS IT VERY HARD FOR HIM BECAUSE HE WAS THE WORKING ONE I WAS A HOMEMAKER AND WE DO HAVE 3 KIDS,11,10,4 SINCE THE TUMOR WAS SO CLOSE TO HIS ANUS THAT HIS WHOLE RECTUM WAS TO BE REMOVED BUT HE WILL HAVE A PERMANENT COLOSTOMY IN ORDER TO LIVE SO BOY WAS IT SO QUIET IN THE DR'S ROOM ALL OF SUDDEN..SO ANYWAYS HE JUST HAD HIS ABDOMINAL PERINEAL RESECTION ON 06/01/07 AND WE WERE DISCHARGED ON 06/06/07..IT SEEMS LIKE HE WAS DOING OKAY AT THE HOSPITAL HE WAS SO ALERT AFTER 9 HRS OF SURGERY AND HE WAS WALKING AROUND HIS ROOM THE DAY AFTER HIS SURGERY THEN AFTERWARDS HE WAS WALKING DOWN THE HALLWAY OF THE HOSPITAL..sO NOW THAT ALL HIS STITCHES AND STAPLES HAS BEEN REMOVED HE'S KIND OF COMFORTABLE BUT HE STILL GOT FLUIDS COMING OUT THROUGH BOTH INCISIONS..AS FAR AS THE COLOSTOMY WE ARE KIND OF GETTING USED TO IT..HE SOMETIMES GETS VERY UNCOMFORTABLE WHEN HE HAS TO GO,IT'S LIKE HE HAS LAY DOWN IN BED AND KIND OF PUSHES THROUGH HIS STOMACH OF COURSE HE SAYS SOMTIMES IT FEELS IT'S LIKE IT GOING TOWARDS HIS ANUS BUT IT JUST IT'S MAKIG IT'S WAY TO IT'S STOMA...WE ARE KIND OF FIGURING OUT WHAT HE CAN EAT SO HE WONT BE IN DISTRESS GOING..LIKE WE HAD ASKED HIS DR AND SAID HE CAN EAT ANYTHING AND ALSO HIS MOOD CHANGES EVERY SINGLE MINUTE..I TRY TO HANG IN THERE BUT BETWEEN HIM AND THE KIDS IT'S LIKE OH MY GOSH..BUT IAM A VERY PATIENT PERSON BUT HE'S NOT WE'VE GOT HHNURSES THAT VISITS HIM 2X A WEEK SO IT'S KIND OF OKAY..I GUESS IT'S MORE STRESSFUL FOR HIM BECUZ' HE'S THE WORKING ONE HE FEELS LIKE HE'S USELESS SO I REALLY TRY TO BE STRONG FOR HIM...
It's been a month or so since you posted your message. Hand in there, it will get better. I too sport a colostomy bag, (for life). I still get the ghost pains of needing to use the bathroom the old way. Talk to your doc about that. Also, I was told I could eat whatever I want, I take two pills a day of senokot-s. It has helped me a lot. I also see a therapist just to help me cope with my new life style.
Hang in there and please post how you all have been coping.
Hugs and God Bless.