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Here are some sites to check out for ET information
www.mayoclinic.org/thrombocythemia
www.rarediseases.org/search/rdbsearch.html (type in ET)
www.oncolink.upenn.edu/ (type in thrombocythemia)
Hope this is of some help to you.
Rebecca
URL: http://www.cancercompass.com/message-board/message/all,13863,0.htm