EHE?

3 Posts | Page(s): 1 

EHE?

by angier on Sat Jul 14, 2007 12:00 AM

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Anyone out there living with EHE? I'd love to exchange information. My brother has it and we are researching all options. Blessings, Angie

RE: EHE?

by darran1066 on Sat Jul 28, 2007 12:00 AM

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There is unfortunately a very real shortage of information about EHE ... I have stated a blo about myself that you are welcome to look at and comment on ... I don't know what this feels about adding links to posts etc so I'll put the address in lower down so a mod can delete it without having to edit the whole post ... if they do delete it go to google and search for living with EHE ... it will return a wordpress site .. and that mine

 Darran

 

address is http://darran1066.wordpress.com/

RE: EHE?

by angier on Sat Jul 28, 2007 12:00 AM

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Thanks, Darran! I'm looking at your site now. Seems like you know Cynthia in Australia too? The registry is fabulous. Feel free to email me:  --Message edited by CancerCompass staff. For personal protection, email address removed. Consider private reply. Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html--My brother started chemo last night in LA. We plan on beating this! All the best...
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