Desperate For Some Answers

I wrote last night, and do appreciate the reply regarding the Divine Intervention experience, but would so appreciate some further info, regarding my brothers diagnosis of metatized prostrate cancer which is now in the bone. My brother has been to the Anderson Cancer Center in Houston, TX, twice now and he is on Hormone shots every 4 months, however we never get any real answers regarding his condition or prognosis. My brother had his prostrate removed 4 years ago, at which time it was thought that they had gotten all of the cancer, however last summer my brother started having alot of pain in his leg, and up on having an MRI it was found that the cancer had spread to the bone. The cancer is in the pelvic bone, as well as on the spine and spots on each of his shoulders. He has to walk with a cane as the Doctors says he is in danger of bone fracture, and is very limited as to how far he can walk without pain. Is there anyone here who has known of someone in this condition who could give me some idea of what we are facing and what kind of prognosis he has? We ask lots of questions but get no real answers. I want to help my brother make the right decisions and do what is best for him, and fear of the unknown is worse for me, then knowing what it is that we are facing and thus dealing with it in the best way possible. I will appreciate So Much any information regarding our situation, and thanks so much for taking the time to read my letter.             

Gracey, are you seeing Chris Logothetis at MD Anderson? He has a good reputation and should give you more answers. I would also suggest that you seek the consulting services of an expert like Dr. Stephen Strum, Dr. Charles "Snuffy" Myers or Dr. Mark Scholz. You should be able to find their contact info online. These people are great at keeping you well informed. You might spend some $$$ on them but they are well worth it. Your brother's condition sounds fairly serious and you need the best care. Any of these three doctors would be good for him / you.

Thanks so much to the person who answered my "Desperate for answers "letter, and for giving me the names of Doctors at Anderson Cancer center. You have been very helpful and I appreciate so much, your taking the time to write back.   Sincerely gracie

My dad is in the exact situation and he is actually do Zometa to help the bones not fracture. Has this been brought up at all? ALso, he is doing all alternative meds and oraganic diet. Look at site like cancer tutor or even do the program fro, dr. budwig as well nutrition 2000 which helped my father a lot. sophia

 

On 7/24/2007 gracey wrote:

I wrote last night, and do appreciate the reply regarding the Divine Intervention experience, but would so appreciate some further info, regarding my brothers diagnosis of metatized prostrate cancer which is now in the bone. My brother has been to the Anderson Cancer Center in Houston, TX, twice now and he is on Hormone shots every 4 months, however we never get any real answers regarding his condition or prognosis. My brother had his prostrate removed 4 years ago, at which time it was thought that they had gotten all of the cancer, however last summer my brother started having alot of pain in his leg, and up on having an MRI it was found that the cancer had spread to the bone. The cancer is in the pelvic bone, as well as on the spine and spots on each of his shoulders. He has to walk with a cane as the Doctors says he is in danger of bone fracture, and is very limited as to how far he can walk without pain. Is there anyone here who has known of someone in this condition who could give me some idea of what we are facing and what kind of prognosis he has? We ask lots of questions but get no real answers. I want to help my brother make the right decisions and do what is best for him, and fear of the unknown is worse for me, then knowing what it is that we are facing and thus dealing with it in the best way possible. I will appreciate So Much any information regarding our situation, and thanks so much for taking the time to read my letter.             

I wish I could tell you that I had a good outcome with this stage of prostate cancer but I cannot.  But you sound desperate for answers.  Now I am not a doctor, nor an expert and all cases are different.  I lost a very dear and courageous person to this disease four years after diagnosis.  He had a high PSA and scans showed mets to bone.  He was 58 when he died.  He was treated by a great oncologist at a terrific cancer center in NYC.  From what I can recall, he had hormone therapy, Zometa (which had a terrible effect on his jawbone), Kastenex (?), chemo and radiation.  Ultimately he had palliative care.  He followed a healthy diet.  We were grateful to have him as long as we did.  Read as much stuff as you can.  Encourage your brother to be assertive and proactive in his care.  Appreciate every day.  I will keep you both in my prayers.  Do not give up hope!