On 5/5/2007
Sedonalady wrote:
On 8/3/2006 Susha wrote:
I would appreciate if you can tell me how long you have been taking Vitamin CIV? How much is it costing for each session? My oncologist has really decided that it is the wave of the future and I take it once a week. I can't afford more than that. I have taken my fourth one this week and I am at 30 grams of Vitamin C. I also finished my chemo treatments last week. I have discussed it with the Center of Human Improvement and they have given the protocol to my oncologist. However, two times a week has been recommended. I do take many antioxidants orally such as Lipoic Acid, E, COQ10 200 mg...vitamin C- 5,000 a day orally and more. I also juice vegetables each day plus taking juice plus capsules. I am sure in the next few weeks I will be taking some scans to see how it is going. Any other information you have , I would appreciate..
Hello there,
Yes, I was on Vitamin C IV--First I took 50 grams three times a week. The infusions lasted for 2-3 hours. This did something to my water retention status. It's called 3rd spacing and caused me to retain too much water. Then I went down to 20 Grams twice a week-1 hour infusions. I probably continued this for about 1 year. The office I went to had it all set up with Blue Cross and Medicare (I have BC) so that I had to pay not one dime!!! That was good!
I can't say that this really helped me at all. In February of 2007, my PET CT came back with a mixed response. Some of the tumors have grown and some shrunk. I then went on Topotecan, something that interferes with the DNA duplication, which is NOT the kind of interference I need. I became very ill, as my WBCs went way down. I just got out of the hospital on Monday 4-30 from pneumonia/pulmonary edema--I think due to the chemo and low WBC. I have heard though, that ONCE you have cancer, the only Vit C that really works is the IV one. It turns into Hydrogen peroxide in the blood, which in turn kills the cancer cells.The P.O. kind is more for preventative things, like to build up your immune system.
What I need is something that interferes with the blood supply to the tumor. Tarceva does this. While I was on this at the Cancer Treatment Center, they did not monitor me well. I was on antidepressants and Cipro for chronic UTIs. You ARE NOT supposed to take these drugs with Tarceva. Still, my CA-125 was as low as it had ever been and my PET CT was great.
I developed a horrific cough, CTCA said it was Post nasal drip--Pshaw! I went to a local pulmonologist and he said it was Asthma and it was written all over the PDR about how this drug can cause this and how one should not take the antidepressants and Cipro, etc. I was not monitored by the CTCA at all for this. The cough cleared, after using basic asthma medications.
On Monday, I am going to a specialist in Phoenix to see if there are any other things and maybe even going back to Tarceve (which my insurance also covered completely with a $40 co-pay) The Oncologist always say "oh, you can't do that, it is too expensive." I would pay for it anyway, even if the insurance didn't.
I hope this makes sense. I have also tried Mistletoe, an injection I got from my local internist who gets it from Germany. It is used in Europe as a secondary drug with chemo. My cancer is so rare though that it's a crap shoot and I didn't get that much relief from this either.
Keep in touch,
Sedona Lady-Kathleen Wilson