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My brother has Soft Part Tissue Sarcoma leg, lungs & brain.

My brother has Soft Part Tissue Sarcoma leg, lungs & brain.

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My brother was diagnosed this year with soft part tissue sarcoma. He has a tumour in the back of his knee, he has numerous nodules on his lungs and a 2cm tumour in the brain. He tried Avastin, chemo, radiotheraphy but to no avail. The leg and brain tumours haven't got any bigger but there are more nodules on the lungs. They are now going to try Sutant and see will that work. Since this is quite a rare cancer and not that many people in Ireland have it I was wondering is there anyone out there with the same symptoms and what if anything is working for them.

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Sondra

My husband has been battling osteosarcoma for about 3 years. He too has numerous tumors in his lungs and he had a large one on his chest. He recently had cyberknife to remove the one on his chest. It isn't a cure for the cancer but it may be an option for your brother for the ones one his leg and brain. It's a great procedure and noninvasive. They have centers all over. Just a thought. Good luck to you. Sondra

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Nevei

Sondra,

Many thanks, any thoughts or ideas are worth following up. I have found a few sites on cyberknife and will check them out and then pass the details on to my brother. I wish you and your husband all the very best. Take care and thank you.

Neve.

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lookingforhope

My husband was 35 when he was diagnosed with Sarcoma, he had a 12cm tumor in his stomach wrapped around his vena cava artery. The first 3 months of chemo didn't work at all and the tumor grew to 18cm. In January of 2007 the doctor put him on Gleevic, 400mg and the tumor shrank down to 8cm over 7 months. We were disappointed to find out in June that the Gleevec had stopped working and the tumor is now about 10cm big. We are about to try Sutent if we can get it covered by insurance or if we are granted through the hardship program with the supplier. Gleevec worked for a few months for my husband, it may be an option for your brother. Good luck and God Bless.

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Kettl

Check into a newer drug, Yondelis.

J&J is involved with it. I''ve talked to some sarcoma patients who have

had some luck with it.

God bless.

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Nevei

Thank you for replying, it is such a hard time and its great to know that there is support out there. My brother has been on sutent for the last 3 weeks and to be honest up to today he has never been better, he is a different person, he is starting to live again. He had a seizure this evening which brings reality back into the situation. He overdid it today because of how good he has been feeling, but thank God he didn't need to go to hospital and he fought it well (I pray tonight that the phone doesn't ring). So I don't know if it is the sutent or the miralce we have been praying ,but he has a renewed life at the minute which I thank God for. I hope your husband gets to try the sutent and maybe you too will see a change for the better, who knows how long it will last but it gives us all a glimmer of hope. So I pray you will get a glimmer of this hope too.

Take care and God bless to you and your husband.

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Nevei

Thank you I will pass this on, but for the minute sutent is there and seems to be working, but I will keep it in mind and will try everything.

Thank you.

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yavall

Is sutent mainly used for gist tumors?

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Nevei

To be honest I am not sure, as I said previously he has tumours in his brain, lungs and leg. His oncologist is trying everything she can and please God this will help. He had an MRI scan Friday 14th so we are waiting for the results of that, hopefully Wed. But he is feeling so good, so very good. He feels well in himself and he is doing great. I will put a message up on Wed /Thurs when we know more. But I'm hoping the news is good because he is doing really good.

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yavall