One patient with glioblastoma still alive nine years later
by randb on Sat Jul 28, 2007 12:00 AM
Hi, two days ago my 61 year old mom was diagnosed w/ stage 4 stomach cancer that has spread to her liver. The doctor said this is inoperable and even with chemo. there is only about a one year life expectancy! Does anyone know how accurate this is? I am new to this and feel he is almost being negative rather than encouraging-or is he just being realistic? For example I asked him if we should be changing her diet to more fruits and vegetables and he said to go ahead and eat what she wants (a sign to me that it doesn't matter at this point) I have been obsessively searching the internet for info. but seem to get conflicting info. or maybe I'm just not understanding yet since this is all so new to me. Could anyone tell me what to expect this next year or two? My father is crushed, he feels his life is ending as well-we are concerned for his safety if something should happen to my mother. Please help clear up this confusion-I understand ultimately it is up to God, but statistically speaking, with stage 4 and it spreading to the liver-with only chemo what is the average survvival? Why is this inoperable? Is there anything we can do to increase her life expectancy? As you can imagine we are all feeling desperate! I live in Canton, Mich. (about 25 min. west of Detroit) if that makes a difference with anything.
by Jodie on Sat Jul 28, 2007 12:00 AM
Sorry to hear about your Mom's condition. Will say a prayer for you and your family. It does sound very serious. I think anyone with a stage lV cancer has an uphill climb to get better, but it is always a possibility as long as they are still here and breathing..I would however, let her eat what ever she can and what ever she wants..when you are battling the disease of cancer, there are so many times that you dont feel like eating anything, especially during those treatments, they make everything taste so yucky, .. so when a person wants to eat when they feel better it is always comforting as a caregiver to see them eating weather it is a healthy snack or a huge scoop of a favorite ice cream flavor.. spoil your Mom, and give her what ever she likes... My father died of bladder cancer in 03 and my Mom has been left behind to carry on and she was never in control of the finances or anything and never had to make any major decisions by her sefl, she has learned and is now doing very well..she is 74..she lost her husband and Dad within a month apart in 03, last year she lost her only sister(bladder ca.) and then in May lost her Mom who lived to be 92...My Mom has been through it, but still seems to keep on going like the energizer rabbit..she does better than me.. so I know your delima very well, and my heart goes out to you and your family.. just stick together and take turns helping your Dad out as he needs you to.. none of us are promised tomorrow, just today, and we should make the best of each day as they come to us.. there is a song...live like you were dying, well i like to add my own words,,love your family, like you are dying... for a few days there I thought I might be facing breast ca. mets. and have since found out that I have to go through some more testing to know for sure, so i still have a little bit of hope that I might just be facing something minor..but for those few days that I thought my cancer had come back as stage lV...alot went through my mind as to how I know I should let people I care about know it before it is to late to tell them..I now need to follow up on what my thoughts were so I can do this now and not wait till I might be facing an end stage cancer diagnosis...
by Thereishope on Sat Jul 28, 2007 12:00 AM
by panthere on Sat Jul 28, 2007 12:00 AM
by Judyb on Sat Aug 04, 2007 12:00 AM
Hi i am very sorry to hear about your mother i hope she gets better i am praying for you and your family. My sister passed on with stomach cancer in 2006 but since then i have heard that mangostein juice is good you get that at most health food stores. Also i have heard green tea is good just a suggestion.
yours truly judy
may god be with all of you
by randb on Mon Aug 06, 2007 12:00 AM
On 8/4/2007 Judyb wrote:Hi i am very sorry to hear about your mother i hope she gets better i am praying for you and your family. My sister passed on with stomach cancer in 2006 but since then i have heard that mangostein juice is good you get that at most health food stores. Also i have heard green tea is good just a suggestion. yours truly judy may god be with all of you
Hi, thanks for your reply and prayers! Becky
by Kevin450 on Mon Aug 06, 2007 12:00 AM
I want to send my love and support out to you, your mom, and the rest of your family. You sound so much like me when my mom was diagnosed with stage IV stomach cancer with mets. I am a primary caregiver and sometimes it is very hard because I want the old mom back. My advice to you and me as well is to cherrish every moment that you can with your mom. I am trying to learn exceptance because I sit on the internet all night looking for answers to this living nightmare. First the doctor told my mom to try to eat as healthy as possible and when he saw my mom's response, he said let her eat what ever she wants. I instantly felt like the doctor had given up on my mom as well. Try to get your mom to eat as healthy as possible and be glad if she still has an appetite. My mother eats very little but she is eating more than before she was first diagnosed back in oct 07. However, she wants to continue with the cheeese doodles, the coca cola, the hawian punch, the suasages, grits, burnt rice, and the fried chicken that has been sitting on the stove all night. Then she has to have her salt and hot sauce with ever meal. I can't just come and try to stop something that she has been doing for over 65 years. And I think that oncologist recognized this long before I knew what cancer was. So I just try to be as comforting and patient as possible, reguardless of how it hurts me. As for what to expect, there is plenty of info out here on the internet, but after staying up plenty of nights, I see that only god knows what the future holds. Bottom line is that everyone is different and it's up to you to put in the work. If you have family support, use it. God knows your going to need it. Don't force your mom to do anything.as much as it may hurt respect her wishes. My love and prayers go out to you and your mom.
by Steeda on Tue Aug 07, 2007 12:00 AM
by Tenny on Thu Aug 09, 2007 12:00 AM
So sorry to hear about your mother. A friend of mine just got diagnosed last week with stomach cancer and have spread to her liver. I was doing all these research on alternatively treatments and came to know about tian xian www.tianxian.com. And also lots and lots of blueberries and purple grapes.
by mookie on Thu Aug 09, 2007 12:00 AM
My father was diagnosed in mid-May with stage iv stomach cancer with metastasis to the liver. Prognosis for this disease is terminal. The oncologist prescribed a chemo combination called FOLFIRI every 2 weeks and a CT scan after 2 months to determine its efficacy. I got the same chemo combination and recommendation from a 2nd oncologist. My father was never able to stick with the aggressive cycle. Several trips to the emergency room (high temp, low RBC, low WBC, blood transfusions, etc...) caused the interruptions. He got pumped with so much antibiotics each time he was in the hospital. Recently we've noticed a progressive deterioration and have decided to stop the chemo treatment. We've registered him with a local hospital and decided to go with their home hospice. We are keeping the scheduled CT scan even though it is safe to assume that the cancer has progressed.
I've scoured the Internet and got information from family and friends about alternative medicine hoping for something, anything. The tragic side-effect of stomach cancer is the loss of appetite or the desire to eat. In essence, they are starving to death.
I don't have any advice to help with the disease. I have personal friends with family members that were victims of stomach cancer and no one survived. I am not saying to "give up". Like you, I am being robbed of someone I love. My father has worked all his life and never got a chance to retire.
My advice (so far) outside the disease:
1. Of course, appreciate the new bond that is formed with family and friends2. Understand their assets and check their beneficiaries3. Consider home hospice4. Most importantly, get yourself checked. Tell your family and friends. It is even more tragic if you don't learn from this experience. An endoscopy is easy.
1. Of course, appreciate the new bond that is formed with family and friends
2. Understand their assets and check their beneficiaries
3. Consider home hospice
4. Most importantly, get yourself checked. Tell your family and friends. It is even more tragic if you don't learn from this experience. An endoscopy is easy.
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