Cholangiocarcinoma

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Evan14 Message: Chemo Drugs Caregiver Evan14 Recommend this Message Report Abuse Email a Friend Track this Message [Remove] Subject: Chemo Drugs Date: 03/02/2006 Congratulations on your success in battling this disease. My wife Dawn was diagnosed with Cholangiocarcinoma (Klatskin Tumor) in December 2005. She had a liver resection in January. We are now trying to decide whether to have follow-up treatments of any kind. Do you recall the Chemotherapy drugs that were used prior to your transplant? Private Reply Quote Reply to This Message Helena Message: Cholangiocarcinoma Caregiver Helena Recommend this Message Report Abuse Email a Friend Track this Message [Remove] Subject: Cholangiocarcinoma Date: 03/21/2006 Cindy I have not seen any messages from you in a long time. How is your husband doing? Private Reply Quote Reply to This Message Helena Message: Cholangiocarcinoma Caregiver Helena Recommend this Message Report Abuse Email a Friend Track this Message [Remove] Subject: Cholangiocarcinoma Date: 06/19/2006 I have not seen any messages lately, how is John doing? My husband Don is not doing well, he is sliding daily, he can only walk with an upright device, can no longer stand on his own. He is now on a pump for pain and it does not seem to help, he sleeps a lot and we have very many bad days. His mind is still so bright but his body is failing. I believe it has now matastasized to all of his back and both hips. It is a horrible cancer and so little help out there. We are both falling apart. I check almost daily to see if there are any updates from anyone. Has everyone died? Private Reply Quote Reply to This Message Ritesh Message: Cholangiocarcinoma Caregiver Ritesh Recommend this Message Report Abuse Email a Friend Track this Message [Remove] Subject: Cholangiocarcinoma Date: 06/25/2006 my dad has this blody cancer and he worked as a gm in a chamical factory making dye for 15 years in india. I say, those who are chem eng, stay away from all these bloody chemicals. there are a few chemicals which are not good for long run so don't risk ur life for work. try to warn ppl u know work with certain unhealthy chemicals. Rites Private Reply Quote Reply to This Message Helena Message: Cholangiocarcinoma Caregiver Helena Recommend this Message Report Abuse Email a Friend Track this Message [Remove] Subject: Cholangiocarcinoma Date: 08/09/2006 I am sad to write that my husband Don passed away on July 27/06. I cannot believe that he has left us, I knew that in June he was stuggling, but for some reason (denial) I still had some hope that he would make it. I miss him so much as do my sons. He was such a fighter and I know he did not want to leave us, but his pain was to much and the doctors kept increasing his dosage every few days. In the end I believe that the medication is the reason he died sooner. Private Reply Quote Reply to This Message Joani Message: RE: Reply Caregiver Joani Recommend this Message Report Abuse Email a Friend Track this Message [Remove] Subject: RE: Reply Date: 12/17/2006 Hi. Looked at your website. Thank goodness I found it. What stage was your cholangiocarcinoma when you had your transplant? My husband (age 57) was diagnosed in January 2006 and has had chemoemoblization twice, and now has "mild progression" in his tumors (none outside the liver) so his doctor wants to start him on oxaliplatin and gemzar. Please share any information you can. Thank you. Private Reply Quote Reply to This Message Pri007 Message: RE: Cholangiocarcinoma or Bile Liver Duct Cancer Caregiver Pri007 Recommend this Message Report Abuse Email a Friend Track this Message [Remove] Subject: RE: Cholangiocarcinoma or Bile Liver Duct Cancer Date: 01/09/2007 On 1/10/2006 Kelley wrote: Hi Everyone! I am new to this website. My brother is 39 years old. He was diagnosed with cholangiocarcinoma in Oct. 2005. We have been searching for others who are dealing with this too. We have been doing a lot of research as I'm sure many of you have too. We would love to get in contact with any of you who would like too. The more we share information the better it will be for all of us. Doctors seem to treat this differently. It's good for us to know what treatment others are receiving. Our family is working on setting up a website just for cholangiocarcinoma. It's in the beginning phases, but we are trying to put all the information that we are gathering there. We have also been in contact with other families who are dealing with this. Let me know if you would like more information. We would love to talk to you. Good luck in this battle. Kelley hi , this is priyank from india,my uncle has been diagonised with bile duct cancer and it seems that its in the preliminary stage so can u suggest us what treatment to follow. Private Reply Quote Reply to This Message Eleni Message: RE: Cholangiocarcinoma Caregiver Eleni Recommend this Message Report Abuse Email a Friend Track this Message [Remove] Subject: RE: Cholangiocarcinoma Date: 01/23/2007 Hi - we are in Australia and have done Gemcitubine with Tarceva after having done Sirtex spheres and prior was 5FU and Gemcitubine - it has been almost 3 years and so far so good - and a healthy no diary diet so no stress on liver function - soy and nothing fried and mainly fish and loads of vitamins and heaps of juices beetroot carrot celery cabbage peppers apples - no chicken and organic beef 1 weekly - looking good to date oh and 70% Lindt chocolate 50 grams per day and Coopers beer 0.5% - change your food as it too is medicine......good luck and keep googling for help..... Private Reply Quote Reply to This Message Liver Message: RE: Cholangiocarcinoma Caregiver Liver Recommend this Message Report Abuse Email a Friend Track this Message [Remove] Subject: RE: Cholangiocarcinoma Date: 01/30/2007 On 1/23/2007 Eleni wrote: Hi - we are in Australia and have done Gemcitubine with Tarceva after having done Sirtex spheres and prior was 5FU and Gemcitubine - it has been almost 3 years and so far so good - and a healthy no diary diet so no stress on liver function - soy and nothing fried and mainly fish and loads of vitamins and heaps of juices beetroot carrot celery cabbage peppers apples - no chicken and organic beef 1 weekly - looking good to date oh and 70% Lindt chocolate 50 grams per day and Coopers beer 0.5% - change your food as it too is medicine......good luck and keep googling for help..... Hi Eleni, My Mum has just started a second round of chemo. This time with Gemcitabine. I came across you message when researching via the net. Mum has secondary Liver cancer, (primary unknown) has had two operations to remove tumors and has had sirtex spheres after her first round of chemo seemed to do nothing. Just wanted to know of any information from someone receiving Gemcitabine on outcomes, side effects, any foods best to keep down etc..? My 28yr old sister passed away 2 years ago from GIST a rare cancer (stomach,liver etc). Mum has been the primary carer for my sisters little (now 2 yr old) baby, I'm desperate to find something or someone to improve mums situation and end this nightmare. I hope all goes well for you and you loved ones. Ann Private Reply Quote Reply to This Message Heart Message: RE: Cholangiocarcinoma - Bile Duct Cancer Caregiver Heart Recommend this Message Report Abuse Email a Friend Track this Message [Remove] Subject: RE: Cholangiocarcinoma - Bile Duct Cancer Date: 08/08/2007 A friend of ours is about to have his family member donate most of thier liver to my fiend. THis is supposed to be a cure since it has not yet matastised yet. Perhaps you could look into this at Mayo as well. Private Reply Quote Reply to This Message
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