Thank you all for your helpful responses. My mom is being treated by Hopkins (I live in MD, so this works well). We did get an appointment at MD Anderson and I would have loved her to be seen there, but she just was not up for the plane ride...the 2.5 hour trip from FL to MD was plenty for her. She's being treated by Dr. Donehower, who seems great. We learned she had some small spots on her lungs (didn't think it could get any worse...it could...). She had her first dose of gemcitabine and carboplatin. Anyone with positive experiences with these drugs?
Many thanks, I'm glad I found this community.