On 9/14/2008
dec49 wrote:
On 9/13/2008
SgtD6970 wrote:
I also have had Tonsil Cancer, I was in VietNam 1969-70 and came
down with this cancer in 2001. I did 7 weeks of radiation twice a day
and had an expermintal chemo once a week for 7 weeks. I did as most on
here have I filed with the VA and was tuned down. I do know that it is
being studied and data is being collected. I would like all who have
posted here to send a short email to the lady below explaining your
cancer. She is the one putting all the data togather.
Mary Burr Paxton, PhD, DABT
Senior Program Officer
Population Health and Public Health Practice
Institute of Medicine
Keck 871, 500 Fifth St., NW
Washington, DC 20001
(202) 334-1731
fax: (202) 334-2939
email: Paxton, Mary
MPaxton@nas.edu
Wishing you all sucess.
Sgt D
Sgt. D, and others.
A
friend of mine is a pharmacist. She was born in Vietnam. On
a recent trip to Calif. I told her about my tonsil cancer. I had
the standard treatment. Six weeks of radiation, 3 chemo
treatments during the same time frame as my radiation, followed by
radical neck surgery. I have dry mouth and my teeth have been
breaking off due to lack of good blood flow to the roots of my
teeth. No dentist or doctor has done anything more than write me
a presciption for either salagen or evoxac. These pills at least
make life livable. However, she is convinced that doctors are
just treating the symptoms and not the problem. She gave me a
bottle of Parotid PMG.
I had no hopes that it would
help at all. My family and I returned from Calif. on Aug.
11. On my last email to her, I told her I was cautiously
optomistic. I honestly believe it is helping. I think my
saliva is actually better than since before my cancer. My cancer
treatment was in 2004. I have had dry mouth ever since. I
don't remember what a normal amount of saliva feels like. Also I
am not saying that it has returned to normal. All I am saying is
that I an pretty well convinced that it is helping me.
I
have no financial interest in the manufacturer of this product.
My only motive here is to offer some possible hope to those who have
been suffering the same post treatment ills that I have had.
If
anyone reads this post and tries it, please report whether there have
been any good or ills effects from it. Remember I have been
taking it for about 5 weeks now. The bottle I received was a gift
so I don't know the price. I don't believe you will find it in a
health food store. The box says 'sold by heathcare
professionals' My friend indicated that I could probably find it
in a drugstore, but probably would have to ask as it would be behind
the counter.
Wishing the best for all.
We go to hell in southeast Asia then return to fight the private hell
of cancer brought on by our service there. Meanwhile all the
draft dodgers are now in congress. Not too bitter.
dec
My father is a Vietnam Veteran or as they say he is NOT a Vietnam Veteran because he served 1956-1962 during a Police Action and not the actual declared war. He was just diagnosed with tonsillar cancer and is due for surgery on September 18, 2008. His cousin also in Vietnam;however much later in years, suffered from Leukemia. He fought to get this covered under VA benefits for years to no avail as an agent orange related cancer. After years and years of fighting the VA he finally did get this covered only to succumb to this illness months later. My father was just recently diagnosed so I am not sure if this is "covered";however they are doing the surgery at the VA in Indianapolis so I would assume it is going to be a covered illness. They have been very good to my father in this regard and have covered all of his illnesses thusfar and is considered a disabled veteran and receives partial disability pay, and usually during any type of surgery and during recovery they have bumped him up to 100% disability pay until fully recovered. I will know more when we talk to the surgeon tomorrow on how this will work. All veterans regardless of where the illness came from should be covered in my opinion and we all need to stand up for these benefits. Our veterans sacrificed everything to serve our country the least we can do is provide medical care regardless of how the illness arises. Our government officials are taken care of no matter what and very few have actually served our country. This is an outrage to treat our veterans in this manner. It is hard enough going through something as severe as Cancer let alone trying to figure out how to pay for such expensive treatment. This is an added stress that no family should ever have to go through. I guess we have just been really lucky and fortunate in this regard with the Indianapolis VA. I just pray they will continue to take care of my father with the best means possible. I will update you with any information I do obtain and his prognosis.