On 8/15/2007
gayleann wrote:
My name is Gayle. Just today my 75 yr old father was diagnosed with
angiosarcoma, on his scalp. No other info-the pathologist just called
his PCP to have him break the news. Apparently he'll be seen at the U
of MN by specialists I've done a little reading of this-doesn't look
promising. In Dec. my 74 yr old mother was diagnosed with inflammatory
breast cancer; and in Jan. I (54 yr old daughter) was diagnosed with
squamous cell CA metastasized to neck w/unknown primary. My mother is
doing NO treatments and will take the years she has left. I have been
thru surgeries, proceedures, scans, IMRT radiation, cisplatin, and just
recently a modified neck dissection. Wow, huh? So when you think life
is getting tough-think of this scenario! I would love to get more
info on angiosarcoma, please!!!!!!
Thanks, Gayle in MN
Sorry about your dad. I think you need more information regarding size, stage, etc. so you know what you're dealing wit.
Research seems to indicate that surgery is the best bet for this.
I'm
a 62 year old male, very active. I was diagnosed about 9 months ago,
had a lump and some bruising on my nose a few months prior.
Dermatologists cut at it and misdiagnosed it.
Finally
had it removed Jan 2 of this year, they essentially took the left side
of my face off and then reattached what's left--the surgeon at NYU
hospital in NY is both an oncology and plastic sureon so I pretty much
look the same. He was REALLY good. Had 7 weeks of radiation (not fun)
and that's been done for about 3-4 months.
Had one
set of scans so far, it's clean thus far. The radiation side effects
are a little rugged now and then, but my stamina is back to 90% (gym,
biking, roller blading) and I feel pretty good and very lucky so far.
And if it doesn't come back, I'm blessed. One thing I've learned is to
enjoy NOW and not worry very much about the past or future.
Don't
let that 12% survival rate thing freak you out. It did me, but my tumor
was small and a slow divider so I am hoping for the best.
I plant to be one of the 12% and live another 20 years.
Rik