Castlemans Disease Help Help

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bessmeg Message: castlemans disease HELP HELP Caregiver bessmeg Recommend this Message Report Abuse Email a Friend Track this Message [Remove] Subject: castlemans disease HELP HELP Date: 08/15/2007 My husband was diagnosed with Non Hodgkins Lymphoma in 1992 and had a course of chemotherapy. Sincs then the diagnosis changed to Castlemans disease Does anyone know of anyone else who has this. I have been informed it is very rare. My husband also has MGUS along with Periphial Neuropathy which causes him quite a lot of problems. The Consultants dont seem to know what treatment to give him. All we seem to get told is this condtion is very rare. I would appreciate any kind of feedback about this please. Private Reply Quote Reply to This Message huskers04 Message: RE: castlemans disease HELP HELP Caregiver huskers04 Recommend this Message Report Abuse Email a Friend Track this Message [Remove] Subject: RE: castlemans disease HELP HELP Date: 09/04/2007 My husband was diagnosed with Castlemans disease in March of 07- Our local oncologist admitted not knowing what to do- You HAVE to go to see Dr. Frits VanRhee at the Univ. of Arkansas Medical Center in Little Rock. The website is www. uams.edu They are the best! Private Reply Quote Reply to This Message huskers04 Message: RE: castlemans disease HELP HELP Caregiver huskers04 Recommend this Message Report Abuse Email a Friend Track this Message [Remove] Subject: RE: castlemans disease HELP HELP Date: 09/04/2007 One more thing- You HAVE to get treatment for this- you can not wait and see what happens- Do you know whether or not your husband has localized CD or multicentric CD? Private Reply Quote Reply to This Message
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