Monophasic Synovial Sarcoma

My wife has monophasic synovial sarcoma that began in the area of her right lung between the lung and the diaphram. Her case was diagnosed in 2000. probably would have metastasized to her diaphram, but the surgeon removed part of her diaphram to try and prevent the cancer from spreading down through that area. It has not spread to her liver, but she did develop a tumor on her heart that had to be operated on and removed.

Hope this can help at all.

Who do you know with monophasic synovial sarcoma?

-Jesse Tolbert,

I know someone...me. Surgery was 1 year 4 days ago at presbyterian hospital in dallas. Mine was located just above the left wrist and was touching the ulna. (which got removed along with a negative margin of soft tissue.)

I'm just glad I can still type. No evidence yet of spreading to other locations. (was a cogenital defect)

 

On 2/8/2005 Jesse wrote:

My wife has monophasic synovial sarcoma that began in the area of her right lung between the lung and the diaphram. Her case was diagnosed in 2000. probably would have metastasized to her diaphram, but the surgeon removed part of her diaphram to try and prevent the cancer from spreading down through that area. It has not spread to her liver, but she did develop a tumor on her heart that had to be operated on and removed. Hope this can help at all. Who do you know with monophasic synovial sarcoma? -Jesse Tolbert,

jesse,

i recently am diagnosed with monophasic synovial sarcoma of the kidney in december 2006 after giving birth to a beautiful and healthy baby girl in october 2006. please if you would kindly share some info. and the treatments your wife received it will be a help to me and my family or any suggestions you might have or advice it will really help.

 please share some info. please. my prayers go out to you and your wife and family. please keep me and my family also in your prayers.

 

lei