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Essential Thrombocythemia

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Subject: Essential Thrombocythemia
Date: 08/27/2007

Hi!  I am a 33 year old female...diagnosed with ET in April 2007.  My platelets have hovered around 1 - 1.2 million and I started taking Hydrea last week.  It's kind of hard to imagine taking something like this for the rest of my life....just wanted to hear from someone....hear your stories and how others with this disease are managing.  -Anne

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becca renee
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Subject: RE: Essential Thrombocythemia
Date: 08/30/2007

Hi,

I was informed at 31 (now I'm 49---almost the big 50) that I had ET...

It was very scary because at the time there was even less info than there is now..still now enough info now though....whats your story???

 

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