Total Glossectomy and Total Laryngectomy

5 Posts | Page(s): 1 

Total Glossectomy and Total Laryngectomy

by gilbert on Tue Aug 28, 2007 12:00 AM

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Hi,

My father was diagnosed with SCC stage IV of the tongue, he went thru chemo and radiation but only to have the tumor return twice as aggressive.  So we were told our only option was to move forward with removal of everything.  When they took the his tongue they said they had to take his larynx and creat a new epiglotis by using his pectorial muscle from his chest.  We were told that he would have trouble eating and talking.  He has been learning to talk by a voice prostesis in his stoma hole in his neck.  I can understand him if I know the topic that he is talking about.  He has been unsuccessful with eating.  He can drink water but that is about it.  Now he has developed a strange feeling on his left side, like his ear is constantly clogged.  Since he has no way of blowing out air, he can't hold his breathe and try to make his ear pop.  He went for a CT scan yesterday to find out what is going on.  Has anyone else gone thru any of the same stuff.  My family is really struggling with this situation.  We are very spiritual but we have to question why this is happening to such a good person.  Please keep my father in your prayers, I prayer for anyone who has been touched by this horrible disease.

 

Thanks,

Holly 

 

RE: Total Glossectomy and Total Laryngectomy

by Griff on Wed Aug 29, 2007 12:00 AM

Quote | Reply

 

On 8/28/2007 gilbert wrote:

Hi,

My father was diagnosed with SCC stage IV of the tongue, he went thru chemo and radiation but only to have the tumor return twice as aggressive.  So we were told our only option was to move forward with removal of everything.  When they took the his tongue they said they had to take his larynx and creat a new epiglotis by using his pectorial muscle from his chest.  We were told that he would have trouble eating and talking.  He has been learning to talk by a voice prostesis in his stoma hole in his neck.  I can understand him if I know the topic that he is talking about.  He has been unsuccessful with eating.  He can drink water but that is about it.  Now he has developed a strange feeling on his left side, like his ear is constantly clogged.  Since he has no way of blowing out air, he can't hold his breathe and try to make his ear pop.  He went for a CT scan yesterday to find out what is going on.  Has anyone else gone thru any of the same stuff.  My family is really struggling with this situation.  We are very spiritual but we have to question why this is happening to such a good person.  Please keep my father in your prayers, I prayer for anyone who has been touched by this horrible disease.

 

Thanks,

Holly 

 


Hi Holly

I have a web site that may help answer your question.  www.webwhisper.org

Griff:

 

RE: Total Glossectomy and Total Laryngectomy

by gordon on Tue Mar 24, 2009 12:00 AM

Quote | Reply

 

On 8/28/2007 gilbert wrote:

Hi,

My father was diagnosed with SCC stage IV of the tongue, he went thru chemo and radiation but only to have the tumor return twice as aggressive.  So we were told our only option was to move forward with removal of everything.  When they took the his tongue they said they had to take his larynx and creat a new epiglotis by using his pectorial muscle from his chest.  We were told that he would have trouble eating and talking.  He has been learning to talk by a voice prostesis in his stoma hole in his neck.  I can understand him if I know the topic that he is talking about.  He has been unsuccessful with eating.  He can drink water but that is about it.  Now he has developed a strange feeling on his left side, like his ear is constantly clogged.  Since he has no way of blowing out air, he can't hold his breathe and try to make his ear pop.  He went for a CT scan yesterday to find out what is going on.  Has anyone else gone thru any of the same stuff.  My family is really struggling with this situation.  We are very spiritual but we have to question why this is happening to such a good person.  Please keep my father in your prayers, I prayer for anyone who has been touched by this horrible disease.

 

Thanks,

Holly 

 


 

hi, my dad has just found out he has to get the total glossectomy and Total Laryngectomy, he is going to get his toungue, voicebox and glands removed..my family has been trying to find someone who has had this done, but weve been unsuccessful, it sounds to me like your dad has had this operation and i would be grateful for any information you could give me about the operation and your fathers quality of life now thanks.

RE: Total Glossectomy and Total Laryngectomy

by KNicole on Tue Sep 08, 2009 12:00 AM

Quote | Reply

 

On 8/28/2007 gilbert wrote:

Hi,

My father was diagnosed with SCC stage IV of the tongue, he went thru chemo and radiation but only to have the tumor return twice as aggressive.  So we were told our only option was to move forward with removal of everything.  When they took the his tongue they said they had to take his larynx and creat a new epiglotis by using his pectorial muscle from his chest.  We were told that he would have trouble eating and talking.  He has been learning to talk by a voice prostesis in his stoma hole in his neck.  I can understand him if I know the topic that he is talking about.  He has been unsuccessful with eating.  He can drink water but that is about it.  Now he has developed a strange feeling on his left side, like his ear is constantly clogged.  Since he has no way of blowing out air, he can't hold his breathe and try to make his ear pop.  He went for a CT scan yesterday to find out what is going on.  Has anyone else gone thru any of the same stuff.  My family is really struggling with this situation.  We are very spiritual but we have to question why this is happening to such a good person.  Please keep my father in your prayers, I prayer for anyone who has been touched by this horrible disease.

 

Thanks,

Holly 

 


Holly,

I know that your post is old but it happens to be one of the only posts regarding Glossectomy and Laryngectomy.  My dad is facing this surgery Oct 22nd and as a family we are trying to be as informed as possible.  Any information you could provide would be helpful.

 

Thank you,

K. Grasso

RE: Total Glossectomy and Total Laryngectomy

by KNicole on Tue Sep 08, 2009 12:00 AM

Quote | Reply

 

 

hi, my dad has just found out he has to get the total glossectomy and Total Laryngectomy, he is going to get his toungue, voicebox and glands removed..my family has been trying to find someone who has had this done, but weve been unsuccessful, it sounds to me like your dad has had this operation and i would be grateful for any information you could give me about the operation and your fathers quality of life now thanks.

I was wondering if you could provide any information that might help me and my family regarding our dad's upcoming surgery (total glossectomy and laryngectomy).  We are feeling desperate by the lack of information surrounding quality of life after surgery.

 

Thank you so much,

KGrasso 

 

 

I was
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