One patient with glioblastoma still alive nine years later
by Patty5 on Tue Aug 28, 2007 12:00 AM
I don't have anything new to tell. Today is my Mama's 76th birthday. For those that don't know she was diagnosed 12/06 with stage 3 EC. She had 5 1/2 weeks of chemo & radiation and last test show NO cancer. She is to have her next CT Sept 18. I just want to enjoy now.
There has been so much saddness on the board lately. Kevin, Bobby and Karen & Debby's Dads passing and a lot of new members having to come to this site. I hate to read about more people having this terrible cancer. This board has been a great help to me. I took today off from work to be with my mother on her birthday. One thing this teaches me is never take for grated those you love.
I pray for all of us. Mary & 2cats, I would love to know how Eddie and 2cats Mom is.
by Aoife on Wed Aug 29, 2007 12:00 AM
Happy birthday to your mum! I had my CT scan yesterday and get the results next Thursday, I am 33 and was stage 3, they treated me with chemo, then surgery. I am celebrating my 8 month anniversary with my husband, we got married 2 weeks after I finished my chemo and he is the light of my life. He may be taking me out to a tapas bar for lunch (they have small portions that I can eat).
All the best,
by Patty5 on Wed Aug 29, 2007 12:00 AM
Happy Anniversary ! You are so young to have to go through this. My mama could not have the surgery. I so hate waiting for results ! I will be thinking of you and praying you get great results on Thursday. Please let us know. Thank you for the birthday wishes for mama. Love,
by Worriedsick on Wed Aug 29, 2007 12:00 AM
Hi Pat! First - give your Mom the biggest hug and kiss from me and please convey my sincere, heartfelt HAPPY BIRTHDAY !! :-) wish to her!! I am so thrilled that she is celebrating a Birthday and having such good health!! She is a strong woman and I can see where you get it from!! How nice that you got to take off work and spend the day with her in a cancer-free way! You are such a wonderful daughter, Pat!
I thought of all my friends from here today. I went for an endoscopy and colonoscopy. I went to the gastroenterologist who scoped my Dad and ultimately diagnosed him. Unlike our first egotistical thyroid oncologist from Hopkins, this Dr. was a wonderfully kind, gentle, compassionate man and an excellent doctor. Not only was he wonderful to my Dad, but also my Mom and me. He remembered my Dad immediately and asked about my Mom when I went for my first consult with him. Anyway, I had a fairly large polyp removed which will be biopsied to see if it was pre-cancerous, hemorroids (UGH) and the endoscopy showed inflammation in the esophagus. He did a biopsy there too and said I have acid reflux which I was astonished to hear because, like my Dad, I have never had a problem with heartburn, indigestion, etc. He informed me that that is often the case. he is not worried about Cancer, but, I am VERY glad I went and had an endoscopy! My point to all this is simply finding something else good that has come from my Dad having EC. If not for him, I would never have known enough to worry about endoscopies or colonoscopies. I quit smoking during his illness, now eat only organic and whole foods and am taking much better care of myself. I am also trying to pass this new found knowledge on to my children and am buying better foods and encouraging them (ever so subtly) to think now about basic lifestyle choices and how it greatly effects their health later. Hard thing to do with teenagers that think they are immortal, but, they are listening! These are ways to let my Dad know that his death was not in vain and that he is helping those that love him take better care of themselves which I know would be so important to him. I encourage all of my wonderful friends on the board to take care of yourselves, it is a gift you can give to your warrior that is fighting or fought this Beast as well as a gift you can give yourself. Anyway, Pat, thanks for such a deeply warming and therapeautic post such as sharing your Mom's birthday with all of us. It's the simple things like Birthdays that are not so simple now but rather complete and cherished treasures!! Enjoy Pat!! Much love to you and again, thanks for sharing with us! karen
by Patty5 on Thu Aug 30, 2007 12:00 AM
Thank you so much for that message. I know your Dad is proud of the changes you have made. I am sure he is watching over you. I never even thought that you could have acid reflux without the burn. I am glad you went and had your test done. We have so much cancer in our family if I get a lump or bump or if anything is wrong cancer is always my first thought. I am glad your Dr is not worried about cancer. I believe they know when they do the endoscopy. So GREAT news there !
Great diet changes too. I do believe diet can make the difference. If your body can fight those cells off itself then hopefully it can help keep people from getting cancer in the first place.
I will give Mama that big hug from you. Thank you Karen. Love,
by Marymint on Thu Aug 30, 2007 12:00 AM
How wonderful for you to share your Mama's birthday, a big hug and kiss from down under to her and you. I always feel good reading how your Mama is doing.
Eddie is plodding along very slowly, he is very weak and frail. I am trying to feed him up a bit and he seems to be able to eat anything in little doses,he walks around the garden until he gets tired. But it is a slow healing. I do hope he starts feeling better and stronger, but this nausea is really getting him down, we even got a special nausea pill that one of the group recommended $136 a pill but they did not help !!!
We have not had any follow up from our Dr's . We went to the GP twice and she still had not received the Discharge Letter. I rang the surgeon up but his was not there and his secretary is away until Monday so I had to leave a message. I know they said something about Eddie having Lymph node involvement but did not talk too much about it because Eddie was so ill and they concentrated on getting rid of all his complications.
Eddie was suppose to have Chemo after the Ivor Lewis but with all the problems he had , and him being so weak they never spoke of it and I now think he may have missed the boat with that.But I do hope they can give him some other sort of treatment for the lymph nodes ( I am not to up on info about that and not even sure how involved they are.
I sound so stupid sometimes but with all the problems Eddie had , heart,lungs etc I could not even think of him having any other treatment at the time and he would not have been able to survive it.
Sorry about this rant Pat , I have not spoken to anyone about how i feel and right now I feel useless.
But anyway I do have Eddie home and that's a good thing we will cross other bridges when we come to them.
Happy Birthday to Mama and love and prayers for you both.
by Debbyw67 on Thu Aug 30, 2007 12:00 AM
Happy belated birthday to Pat's mom!! Another birthday is certainly something wonderful to cherish, especially on this site!! Hope you enjoyed your day off Pat. You are an awesome daughter and I am sure your mom loved spending the day with you.
Karen, you should be an author or a greeting card writer or something. Everything you write is always just perfect. Most of the time it is exactly what I am thinking too which is weird. Anyway your thoughts are always so beautiful and well expressed. I too am going to my PCP on Sept 7th to discuss the colon and esophageal cancers that are in my family history. I am going to press him for referrrals as well. I do think that this increased awareness of cancer and the ability to make life changes is a special gift from my dad as well. It is just awful to lose someone so wonderful in exchange for the opportunity to protect myself and those I love by making important lifestyle changes. I too am trying to slowly change my families eating habits and make sure we all get lots of physical exercise, etc. My pre-teen boys are resistent to veggies so it is not going so well but will keep trying!!
by Worriedsick on Fri Aug 31, 2007 12:00 AM
Hi Debby - you are too nice. Actually, I am a greeting card writer!! Just kidding! I'm a dog trainer which is a far stretch from being a writer. Anyway, I am so glad to hear that you are going to your PCP soon! We have to honor our Dad's by heightening our awareness and doing what we can to be healthy and give our children education which will arm them against diseases when they are older. Don't get me wrong, I'm really not obsessed about it, because I presume that would be counterproductive :-) but I am convinced that nutrition does play a very key role in allowing our bodies to operate in the most efficient manner they can to create an environment that is NOT conducive to cancer and other diseases as well. I know that none of us are getting out of this alive so to speak, but, I would like to be as healthy as possible. It is hard with the young ones though! My oldest girl is 18 and my twin girls are 15 1/2 and for the most part they listen for the familiar ding of the microwave to tell them dinner is ready :-) I do cook, but, they are all running in different directions, etc. and it is very hard! Not to mention, they like different things. I don't think they can even muster up a mental picture of someone with an apron, flour, water and rolling pin - well, actual, I'm sure they wouldn't know what a rolling pin is...... or an iron for that matter. If asked to describe a cook, I'm pretty sure they'd describe the Pillsbury Dough Boy. Well, I am trying to teach them now and I'm just buying good foods only. So, they'll either eat it and change their habits a bit or kill me in my sleep, take my credit card and head to the nearest Dunkin Donuts :-) I hope your family is doing as well as they can. I know it's hard - I miss my Dad more in the past month, I guess just finally realizing he isn't coming back. It is great to hear good news like Pat's mom celebrating her birthday! I love it! You take care Debby! It's always good to see you on the board! love karen
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