On 8/29/2007 harley boy wrote:
I have been on Nexavzr for 8 days now and my scalp is really itching and hurting as if someone pulled my hair out--has anyone had this same reaction and if so what did you do about it to relieve it?
I was diaganosed with RCC June, 2001...15cm tumor on rt. kidney, stage 2, with no apparent mets.
In Dec. 2004 I was diagnosed withmets to the spine, L1, and I had radiation. July, 2006 I had mets to the pelvis with progression in the spine and I was started on 50mg of Sutent. I had a terrible reaction after 2 weeks ...I was then put on 25mg and tollerated that dose well. After 4 months my scans showed progression and I was started on Nexavar in Nov. 2006. I had almost every side effect that one can get on this drug. My hair loss started several months after I started Nexavar. It was predeeded by terrible scalp pain. The pain subsided after 2-3 weeks.
This past July my scans showed progression...a spot on my scull,soft tissue invovement, increase in one of the spots on my pelvis (had radiation for that) and a tumor in my rt. arm. I have just completed my 5th treatment of torisel. I am experiencing severe muscle pain in my thighs,buttocks and lower back. Since the drug is so new and I am the first patient my Doc. has on torisel he doesn't know about this side effect. The literature doesn't have any info on this . Dr. Figlin at the City of Hope recomended that I start torisel so I put a call into his nurse and left a message asking about this and I have not gotten a response.
Have any of you had any muscle pain with torisel???
Ginger