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Feeding Tubes

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Subject: Feeding tubes
Date: 09/02/2007
I have had tube in for four months and just learned it will be in for a lot longer.  Has anyone had experiance with long term feeding tube issues?  Ie: I have twice had to replace the tube plug due to wear, do you know of simple fixes for this problem.  Also, are there any ways to protect the tube via a strap or such in order to allow greater exercise and bike riding ability.  Tks. Ed Walsh
Subject: RE: Feeding tubes
Date: 09/02/2007

 

On 9/2/2007 Ejw00100 wrote:

I have had tube in for four months and just learned it will be in for a lot longer.  Has anyone had experiance with long term feeding tube issues?  Ie: I have twice had to replace the tube plug due to wear, do you know of simple fixes for this problem.  Also, are there any ways to protect the tube via a strap or such in order to allow greater exercise and bike riding ability.  Tks. Ed Walsh


Hi Ed,

I had treatment earlier in the year and had a peg tube for about 3 1/2 months. There was a couple of things I did to alleviate the discomfort or awkwardness of having a 18" tube projecting from my stomach. First, I took one of my son's old baby socks ( he is now four) and covered the end that had the pinch clamp with it. I found the constant irritation of it rubbing against my stomach was stopped immediatley. I also took a lanyard ( neck thingee ) that is typically attached to a sports pass, press pass , or trade show badge that has a little spring clip on one end and wore this around my neck. I looped a rubber band around the tube about 4 inches up from the end and clipped the lanyard to the rubber band. This was a far better solution than tucking the tube into a pocket or leave it dangling inside my shirt. As lightweight as the tube was the little bit of pressure pulling against the plug inside my stomach, made a tender / sore spot at the point where it pressed against my stomach on the inside. This especially happened at night, when I would roll over onto it, causing it to be be pulled harder. The lanyard and sock contrpation helped more than anything else my nurses or docs could suggest.

I hope this helps,

Matt 

 

Subject: RE: Feeding tubes
Date: 04/03/2008

Hi Matt (and Amy),

 

How are you doing now? How is recovery? I've read your and your wife's posts about tonsil cancer, and would very much like to know a year later how it's going, physically and emotionally.

 

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