How do lifestyle factors and exposure to environmental substances affect our cancer risk?
by Stephen_vaughn on Tue Sep 04, 2007 12:00 AM
I have come across a website "cancermed.com" given to me by another person on this message board. It was founded by Dr. Stan Burzynski. It sounds to good to be true. Can Anyone out there that has heard of this place or Dr. Or any info about this type of treatment please let me know what you have found. Or if there is anyone who has dealt dirrectly with this place. Not sure what to think but it was very interesting to say the least.
Thank to all and keep positive
My prayers are with all.
by Lorre_G on Tue Sep 04, 2007 12:00 AM
Dr. Burzynski's clinic is notorious. For many years he would not work with the FDA. Apparently now he is doing some clinical trials. My experience with him relates to patients of my brain & spinal tumor program. They were patients who had tried and failed all conventional treatment including chemo and radiation. None survived Dr. Burzynski's treatments. He claims many success stories and there are many testimonials on his web site. He has numerous critics and some even question his medical credentials. I think you would really need to see some of the protocols and abstracts to see what the outcomes of his treatment are and if they offer hope to you or your family. His treatments are expensive and probably not covered by insurance.
This is just the little bit I know first hand of his clinic.
by Shemay on Tue Sep 04, 2007 12:00 AM
On 9/4/2007 Stephen vaughn wrote:I have come across a website "cancermed.com" given to me by another person on this message board. It was founded by Dr. Stan Burzynski. It sounds to good to be true. Can Anyone out there that has heard of this place or Dr. Or any info about this type of treatment please let me know what you have found. Or if there is anyone who has dealt dirrectly with this place. Not sure what to think but it was very interesting to say the least.Thank to all and keep positiveMy prayers are with all.Steve
by Marybc on Tue Sep 04, 2007 12:00 AM
I searched for info on this clinic also, since I live in Houston, and had not heard anyone here talk about it. I had them mail me a packet of information and tried to get my sister, who had inoperable cancer, to go for an interview and see what they had to say. She was never willing to go, both because she had complete faith in conventional medicine, and because the first visit would cost about $600-800. As I remember, insurance either would not cover this place, or maybe they said, "some insurance might cover some of it". The clinic is less than 20 miles from me, so I should have checked it out, but I was so exhausted taking care of her and spending endless days at MD Anderson, I never did. Also, I think it required daily treatments forever, or until you were better, and my sister needed to go back home, out of state, in between chemo and radiation. I think that normally there are some IVs involved for several hours every day.
I was most interested in their statements about nutritional support which is totally ignored by conventional oncology, and their comrehensive care approach. Doctors and nutritionists at MD Anderson (and her oncologists back home) were amazingly negative about any vitamins or minerals, and comprehensive care seems to be a foreign concept to busy cancer treatment professionals everywhere.
I was never able to find anyone to talk to who had been to the Burzynski Clinic. I looked up everything I could find on the internet and saw a lot of negatives from conventional med people. I'm not sure that is a reason to ignore it. Many things that have been dismissed by doctors have been found helpful by lots of people. But you do have to be skeptical if you have to pay a lot of money for something that you are not sure will work. If you live nearby, have given up on chemo, and have money, I might consider it.
Similarly, I was unable to find anyone who had been to "Cancer Treatment Centers of America" which have great commercials about cures, and comprehensive care. Although their high pressure sales phone consult made me feel like I was buying a used car.
It is so hard to know what to do. If the person with cancer has the energy, and wants to take control by getting all the information they can, I would encourage checking out a lot of places first hand if they can afford it. If not, it is important to find a doctor that has had a lot of experience with that type of cancer, get at least a consult at your nearest approved "comprehensive cancer center", and keep up with the research. If there is limited time left, you have to consider whether you want to spend it travelling around to hospitals, or spending more time at home with family.
Good luck to you.
by Willing on Wed Sep 05, 2007 12:00 AM
Steven I sent you the information and here are the facts.
1-Burzynski has been authorized to proceed with a phase III trial for Brain Stem Glioma.The FDA has asked for this and it is presently the only phase III trial for this tumor.The phase II trial yielded GREAT results.
2-Burzynski is about to celebrate 30 years in buisness with a huge party for his survivors at the OMNI HOTEL in Houston.I will be there with my wife.
3-He has been in buisness for 30 years with NO insurance coverage and 6 hospitals right down the road, including M.D.ANDERSON.His clinic is very successful so he must be doing SOMETHING right.
4-Even though web sites like cancer compass feature literally hundreds of complaints about hospitals and side effects from drugs, you will be hard pressed to find any complaints on any cancer web site by any living Burzynski patient about there treatment at the clinic.
5-Burzynski is presently the ONLY cancer doctor in the country to have 6 patients live 5 years or more with DIFFUSE INTRINSIC BRAINSTEM GLIOMA. This was verified to me by the FDA.
6-Most people who BAD MOUTH Burzynski either work for hospitals or drug companys, or have there large retirement accounts invested heavily in drug companys.
by For_Michael on Sat Sep 15, 2007 12:00 AM
To comment on the previous message posted by "willing":
1. The Phase III trial you speak of is fully approved by the FDA or does it require protocol revision?
2. Other clinical sites involved in Dr. B trials.
3. It would be helpful if you would list this researcher's full publications so that the group may decide objectively future treatment plan options.
4. You have listed data on the survival of those with a pontine glioma (these survivors were out of how many treated?) Where was this published?
5. Do you work for this clinic?
by cafinman1 on Fri Oct 31, 2008 12:00 AM
Havving lost both parents to cancer, I would consider myself as an expert in dealing with this disease. In desperation, I took my father to Dr.Burzynski after reading about him on the web.I even interviewed a patient who claimed he saved her life (she subsequently had died of cancer). I decided to take my father to Houston for treatment for 3 weeks to see if he could help. I knew well in advance that my dad was at stage 4 and our chances were slim, but I was told that it would cost $300 a day for the treatment and it was not covered by insurance. We went and soon discovered that we were completely scammed.
For some reason, every 1000 patients that contract cancer and get to stage 4, 1-2% of these patients survive. So if Burzynski sees 1000 patients a year, there is a good chance that "miraculously" a few will get better and they will actually attribute their success to Burzynski. Here is where the scam lies. Desperate people with no hope will do whatever they have to do, spend whatever money they have, even if it means going broke.
What was supposed to cost me $6,000 for 20 days, ended up costing $20,000 as the $300 was just for the medicine (which is a synthetic urine) and everything else cost a fortune out of pocket. What is totally wrong is how they continued to bill my credit card even though my father has passed away. I tried to dispute it and after Burzynski provided false documentation, my credit card company told me to take him to court.
Unfortunately, there are no medical cures. If they aren't doing it at Sloan Kettering, Cedars Sinai, Mass General Hospital, it doesn't exist. I wanted to believe there was a conspiracy theory that big pharma wanted cancer to stay around to sell chemo and other drugs, but this is not the case.
Please take my advise and avoid Burzynski like the plague.
by SeeAad on Tue May 19, 2009 12:00 AM
Can you please give me the contact number or the doctor you are visiting. I am looking for alternatives for my son. The doc has suggested chemo, which may be the path that I have to take, but I am trying and doing all the home work
by lucyp on Fri Nov 06, 2009 02:20 AM
Shemay would you mind sharing the name and location and number of the doctor that you now go to. Thanks so much we are lookinf for our path. lucyp
by Gagbm on Sun Jul 25, 2010 02:54 AM
The last member on this board I recall going to the Burzynski clinic began treatments and was told the treatment was effective despite the tumor growing 20%. After a couple of months her disease had radically progressed and she died shortly thereafter.
Burzynski's treatments have not proven to be effective in the vast majority of clinical trials completed to date. The abstracts Burzynski publishes about responses in single cases are statistically irrelevant because they are hand-picked and do not include the context of how many patients are treated, their previous treatments, and the results of those treatments.
My wife is a 5+ year GBM survivor and we chose her treatments in conjunction with her doctors based on published statistics from clinical trials. We participated in 2 clinical trials as well. She is cancer-free and just ran her first marathon this past Spring.
I wish you the best of luck!
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