Leg and lower back pain

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Leg and lower back pain

by sugarbabe on Thu Sep 13, 2007 12:00 AM

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I was just diagnosed with cervical cancer within the past couple months. I had an endo biopsy, colposcopy/biopsy and a LEEP. From the Leep the margins were not clean, the pathology report showed involvement, however my doctor does not have the hysterectomy scheduled until the first week in December, (insurance issues) Either way what I'm getting at...

This pain I've had in my lower back since before I originally had my pap that threw up all the red flags however these past few months the pain has become more intense. I have pain from the moment I wake until I go to sleep and on more than one occasion it has caused a lack of sleep, waking me during the night. My legs and back hurt! There are days that it's not that bad and I can function to my maximum potential and then there are other days (like yesterday) that I was literally bed ridden.

The doc prescribed me some pills which helped last night greatly.. Luckily I haven't had to take any today, the pain fortunately has been bearable. My question is ... Is this normal? I keep questioning my doc and he really doesn't have any answers for me, other than I'll have the hysterectomy in Dec.

I'm wondering if he miss diagnosed it .. I wonder if I have ovarian cancer.. The reason being.. My legs and lower back are in constant pain, I'm continuously tired, and I'm always bloated. I guess I'm just worried. anyone with any suggestions please feel free to comment.

-S

 

RE: Leg and lower back pain

by SydsMom on Fri Sep 14, 2007 12:00 AM

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I am wondering if you have had an MRI or a PET scan after the biopsy.  A scan would tell what stage the cancer is at and where the cancer is exactly.

RE: Leg and lower back pain

by sugarbabe on Fri Sep 14, 2007 12:00 AM

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No I haven't had either even though I brought that up to the doc.

RE: Leg and lower back pain

by Vintage_fj on Fri Sep 14, 2007 12:00 AM

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On 9/13/2007 sugarbabe wrote:

I was just diagnosed with cervical cancer within the past couple months. I had an endo biopsy, colposcopy/biopsy and a LEEP. From the Leep the margins were not clean, the pathology report showed involvement, however my doctor does not have the hysterectomy scheduled until the first week in December, (insurance issues) Either way what I'm getting at...

This pain I've had in my lower back since before I originally had my pap that threw up all the red flags however these past few months the pain has become more intense. I have pain from the moment I wake until I go to sleep and on more than one occasion it has caused a lack of sleep, waking me during the night. My legs and back hurt! There are days that it's not that bad and I can function to my maximum potential and then there are other days (like yesterday) that I was literally bed ridden.

The doc prescribed me some pills which helped last night greatly.. Luckily I haven't had to take any today, the pain fortunately has been bearable. My question is ... Is this normal? I keep questioning my doc and he really doesn't have any answers for me, other than I'll have the hysterectomy in Dec.

I'm wondering if he miss diagnosed it .. I wonder if I have ovarian cancer.. The reason being.. My legs and lower back are in constant pain, I'm continuously tired, and I'm always bloated. I guess I'm just worried. anyone with any suggestions please feel free to comment.

-S

 


Hi -S

My late husband died of Multiple Myeloma.  While I do not wish to frighten you in anyway, I want to urge you to get another opinion etc, -especially if your Doctor doesnt seem to know what is causing your back and leg pain.

We are all far too trusting with our Doctors.

My husband was literally running back and forth to his GP of many years, with all sorts of back, leg, shoulder pain etc that wouldnt cease.  The GP  - never once ordered a test, sent him to a Specialist or even tried to 'find' the reason behind this pain. 

My husband's pain was so intense in the end that we went to a major hospital where - they took one look at him and his pain etc and ran every test they needed to make a diagnosis.  He had Multiple Myeloma and had had it for at least two years prior to diagnosis. 

 Due to the total incompetence of the GP -my husband was literally robbed of his chance to manage the disease and try for a remission period that can be achieved if caught in the early stages.

 The reason - he took so long to be diagnosed -was because my husband was 'old school' in his manners, behaviour etc and believed every word the GP said, (as we were brought up to do...The Doctor was almost like GOD and certainly not to be questioned, and it didnt even cross my husband's mind nor did he question (until later) why the GP didnt order any tests etc.

So please S - check it all out - get another opinion.  This is your life -

Good Luck -L

RE: Leg and lower back pain

by SydsMom on Fri Sep 14, 2007 12:00 AM

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On 9/14/2007 sugarbabe wrote:

No I haven't had either even though I brought that up to the doc.

Hope you don't mind, but I'm going to tell you what I experienced as a cervical cancer patient:

I went through the LEEP, was told by the gynecologist that everything looked good and then a week later, he called and told me that he got the pathologist's report back and I had cervical cancer with no margins.  He said that I might have to undergo a radical hysterectomy but I would need more testing to find out if the cancer had spread and, if so, what other organs were involved.  He IMMEDIATELY recommended that I see a gynecological oncologist who would know more about this and referred me to one right away.  Luckily I live in the Northeast and there are great hospitals and cancer clinics that are readily available to me.

Eight days later I went to the cancer clinic, underwent a pelvic MRI and saw the gyn-oncologist.  At first, before the gyn-onc saw the MRI results, he thought I would be undergoing the hysterectomy and even made an appointment for that.  After seeing the MRI, he realized that the cancer had gone to one of my pelvic lymph nodes (he said I was Stage IIIB) and surgery would have been the TOTALLY wrong thing to do.  Instead of surgery, I would have both external and internal radiation treatments as well as chemotherapy (low dose, just to enhance the radiation).  The internal radiation can only be given IF your internal organs are in place; it needs the structure of the organs for the radiation delivery.  A few days later I had a PET scan to check to see if the cancer was anywhere else in my body (it wasn't), saw the chemotherapy doctor and the radiation oncologist all on the same day.  I think it was just a few days later when I started treatment.

You absolutely have to get those scans done.  If the doctor does a hysterectomy without finding out how widespread the cancer is, he is doing you an enormous disservice.  Please go to your nearest city and get a second opinion at a facility that has seen lots of cervical cancer cases.  Experience with this (and any cancer) is extremely important.

As far as the leg and back pain, my gyn-onc asked me if I was having pains there. I wasn't, but he asked me because it isn't uncommon apparently. 

Here's the most important part:  Even though you are very vulnerable right now, having been diagnosed with cancer and worrying about it, you have to advocate for yourself and be assertive about asking questions and getting answers.  You don't have to be obnoxious, but you simply need to get answers to your questions.  Your gynecologist should be sending you to a gyn-onc.  He has limited knowledge about cervical cancer.

Good luck and go get that second opinion. 

 

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