One patient with glioblastoma still alive nine years later
by Caseydtx on Tue Sep 18, 2007 12:00 AM
by Njtwinmom on Wed Sep 19, 2007 12:00 AM
My Mom, at 66, is a Stage IV. No organ involvement, but nodes throughout the pelvis. She has exhausted all the chemo out there and is currently going through testin to see what her options are at this point.
At 89, and with multi-organ involvement, I would say your Mom has certainly fought a good fight. Doesn't the doctor feel at this point that she should spend more QUALITY time, rather than searching for something to give QUANTITY? That really is the issue at hand. If Mom is comfortable and well, leave her be to enjoy the time she does have. That's just my theory though.
Best to you, and prayers for your Mom.
by Mindybobo on Wed Sep 19, 2007 12:00 AM
Hi sorry to hear about your mom. There really is no set time. Every patient is different. My dad stoped chemo in November and in April started to have complications from the chemo. His lungs filled with fluid and after that he only lasted 2 1/2 months. He had mets to abdomon and lungs. You might want to talk to the dr about this. All I can say is spend as much time with her and keep her comfortable. Any pain make sure she gets pain meds and follow the drs orders. Also the drs will tell you when to call Hospice in. Mindy
by Caseydtx on Wed Sep 19, 2007 12:00 AM
by Hadassah on Wed Sep 19, 2007 12:00 AM
Please check out my posts on the CAAT diet administered by the A P John Cancer Institute in Florida.
It is a biochemical diet that can treat cancer without chemo. I think this is ideal for older citizens with cancer as it is gentle. However, the protocol is quite exacting and your mother will need help sticking to the plan. But to my mind this is preferable to chemo. I refused chemo and the 3 cm growth that I was recommended chemo for completely disappeared after five months of being on the diet.
Let me know how you get on and dont hesitate to contact A P John for information and help.
by Mindybobo on Fri Sep 21, 2007 12:00 AM
by mytwin on Sat Mar 27, 2010 05:46 PM
hi casey i was wondering how long your mom has had her cancer. My twin got hers in april of last year she is 53. They also found that she had colon cancer that had spread to her liver and lungs. After 2 different batches of chemo her body is saying enough,so now she has to decide to take a break or not. She is always tired and seems to be losing her appetite. When we first found out they said she had about 2 years.I was wondering if they would tell you ,i asked and they said everyone is different but i can see her losing the battle.
by itsmelissa on Mon Mar 29, 2010 04:24 AM
Don't give up!!!! Your twin needs you to be strong. After months of being on FOLFOX my platelets plummeted, and now I am on steroids, they are helping so much with my energy and appetite, hopefully this might help if she hasn't already tried it. Good luck and God bless you, your family and your sister.
by livingbyfaith on Mon Mar 29, 2010 09:13 PM
I agree with these responses, I would only add a few natural things that can help, flax oil and cottage cheese, Avemar, essiac tea, selenium, various supplementw. The tumors may not continue to grow. Pray for wisdom.
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