Ok, I need some answers & support. My husband has been on Sutent since Sept 06' . He had a wonderful response to the 50mg (60% reduction as of Dec) . Well, his Dr's got a little ahead of themselves and reduced his dosage down to 12.5 mg which we weren't sure was a good idea but "they are the professionals". The reason the dosage was adjusted in the first place was that his side effects were so bad almost intolerable.
Well, needless to say the tumor increased in size back to approx the original size.
Here's the question: Recently my husbands right Lymph node in the collar bone area has increased in size. From what I understand this can be a cause of either one extreme or the other-New side effect from Sutent OR he has stopped responding to the meds and is developing new tumors.
Can anyone offer advice or personal info to help us cope w/ this news?? He has a appointment on Mon to have a full body CT done but his last one 4months ago was the one that showed the increased tumor size from the reduction of dosage..
Has anyone else had enlarged Lymph nodes as a side effect of Sutent..
Please keep us in your thoughts and Prayers, as I always do w/ all of you.
Thank You
Tara