Caregiver

My wife, who is my caregiver would like to start talking to some other care givers. Everyone who has myeloma knows that we couldn't make it without our rocks, our care givers. Does she start her own profile? I don't think she wanted to just use my user name. She wants one of her own if possible. I have been telling her great all of you are. She is ready to "meet" you as I have. Love all of ya. Poppy

 

On 9/28/2007 Poppy 1952 wrote:

My wife, who is my caregiver would like to start talking to some other care givers. Everyone who has myeloma knows that we couldn't make it without our rocks, our care givers. Does she start her own profile? I don't think she wanted to just use my user name. She wants one of her own if possible. I have been telling her great all of you are. She is ready to "meet" you as I have. Love all of ya. Poppy

 

I think she might want to set up a new user name for herself.  I hope she does decide to do this.  I look at this everyday now.   How are you doing?  I would like to know how old you are and how long you have had this horrible thing.   Connie

I am very anxious to hear from your wife.   Being a caregiver is very hard.  It is so hard looking at someone going thru MM that you love so much and feeling so helpless.  I would start her own user name or whatever.  She just needs to Vent sometimes and that is what I have found thru this.  I'm not alone there is so many out there.   Connie

I too am a carer.  Taking care of my husband who has been diagnosed with MM for the past two years.  He now has monthly infusions of Pamidronate and is in 100 remission.  I have posted elsewhere on here that he signed up for a Trial using Thalidomide and because of the high doses involved, he has lost the use of his hands caused by the irrepairable destruction of the nerves.  As you can imagine, life is pretty tough.

I would not recommend a Caregiver to use this Board to vent their fears and frustrations if the person for whom they care also has access to the same site.  That would not be fair to either party.  The UK has a number of sites dedicated to Carers only - perhaps a look at UK Carers (not Carers UK) might give her some idea of the type of board she may find helpful.

There are times when I could cheerfully strangle my man - and I wouldn't want him to know about it, which he would if he were able to read all my postings!!!

 

 

 

 

Hi.  My husband has MM .  Life can get pretty tough at times.  Watching them go through decline phases hurts.  At times, I feel very helpless.  I feel like I'm fighting an enemy I can't quite define.  But, I know that God helps me through it all.  And talking to other people so that you don't feel like you are the only one helps., Many blessings to yoiu

Patty 

 

On 2/20/2008 aliveandwell wrote:

Hi.  My husband has MM .  Life can get pretty tough at times.  Watching them go through decline phases hurts.  At times, I feel very helpless.  I feel like I'm fighting an enemy I can't quite define.  But, I know that God helps me through it all.  And talking to other people so that you don't feel like you are the only one helps., Many blessings to yoiu

Patty 

Hi Patty.  I am Shirley, Poppy's wife.  You are right. Life can get pretty tough at times watching the one we love go through periods of pain and depression.  As with you, God has helped us deal with MM and without Him I don't know how we would have got through it this far. Right now, my husband is doing better than he has in some time.  We have been on this journey for a year and a half.  Even though he is better there are still times when he is very tired and sleeps a lot.  With all the medicine he is on, I don't know how he functions at all.  How long have you and your husband been dealing with MM? Since my husband's diagnosis, we hear of more people who have MM.  We bought a new car a few months ago and the man at the dealership who was in charge of financing said he has MM. We never heard of it until my husbands diagnosis.  We have so many wonderful friends and family members who keep us in their prayers and I know that is what has helped us both get through this. So, you are not alone.  I have been emailing a lady from Australia for several months now whose husband also has MM and is in the last stages of this terrible cancer.  We have become friends even though we are seperated by many miles.  It would be my pleasure to have you as another email buddy. Hang in there, Patty, and remember you are not along.  Best regards to you and your husband.