Women who don't have BRCA mutations could have other high-risk genes that affect treatment choices
by rdmslm on Tue Oct 02, 2007 12:00 AM
I would like to know if anyone could give us info regarding how long of stay apporx. in hospital for the surgery. What type of recovery is involved at home. What type of life changes are we looking at. This info is for our family, we have a sister that is 57 and has gone thru chemo and radiation and we are hoping for the surgery to remove the tumors.
by saved_by_grace on Tue Oct 02, 2007 12:00 AM
On 10/2/2007 rdmslm wrote:I would like to know if anyone could give us info regarding how long of stay apporx. in hospital for the surgery. What type of recovery is involved at home. What type of life changes are we looking at. This info is for our family, we have a sister that is 57 and has gone thru chemo and radiation and we are hoping for the surgery to remove the tumors.thank you.
My husband was diagnosed with stage 4 pancreatic cancer on February 27,07. He had the Whipple February 28, 07. He had several setbacks (infection, low blood count, internal leakeages). He was released 3 weeks after surgery. After recovery period, he had radiation,chemo, and a feeding tube put in. My husband of 34 years, died on August 27th. My advise is to pray first, then get all info you can, get second opinions(you get second opinions on a new pair of shoes, so why not this!),ask the doctors the hard questions, get copies of all medical records and prescriptions to carry with you, and lastly never put off saying or doing anything until tomorrow. (including getting all affairs in order). We were never told he was terminal.
saved by grace
by AnniePG on Tue Oct 02, 2007 12:00 AM
I am told all cases are different. My husband just had a very complicated whipple procedure that took over 20 hours. He spent approximately 1 week in ICU and one on the regular unit. Discharged approx 2 weeks after surgery. He has been home a week now and requires A LOT of home care. I give him IV antibiotics, a few injections per day, handle drains and dressings, monitor his blood sugars and and he is on IV feedings (TPN). While this all sounds overwhelming, it is doable. The antibiotics will be finished soon.
The good news is that he is doing well, getting stronger every day. He is able to do more and more for himself. I am happy to do this for him. I think that there are other alternatives if a caregiver cannot handle all of this, such as an extended care (stepdown) unit. However, I was in a position to help and I wanted him home.
While we were in the hospital, we saw another whpple go home in 6 days so everyone is indeed different.
Best wishes with the surgery. The patients who are even given the option are the lucky ones. If I can answer any other questions, just ask.
by Nysurvivor on Wed Oct 03, 2007 12:00 AM
I had my whipple in 1990 and stayed in the hospital for 10 days. The recovery is tough but, obviously doable. To this day, I protect my stomach area near my scar. I was always afraid my insides would fall out. I did everything very slowly and had difficulty eating. I could not hold everything down and finally ate a lot of all kinds of potatos, ground up chicked, drank ensure to gain weight back. We moved to Florida about 5 months or so after my surgery and I will always remember the first time I went into our pool. I was able to walk down our driveway at first, then down the block, then little by little, I got my strength back. It took me a long time to stand straight but my surgeon told me that he was careful to cut the muscles vertically, not horizontally so I would not have too much
of that problem. I still eat lightly and get full easily. It is a long road but when we consider the alternatives, not so bad.
by Kendel on Thu Oct 04, 2007 12:00 AM
Once you accept the notion that surgery is not something we would like, but it is something we need. How important that need might be could influence your experience.
My experinece at the University of Miami, Sylvester beginning on May 5, 2006 was excellent. The facility, surgeon and his team together with the nursing staff provided the basis for achieving the best possible results within the surgical context.
Within 5 days of surgery I was walking 2 miles within the hospital. I asked Dr. Levi if I could be discharged; he asked me to duplicate what I had already done that day, I did, and I was discharged that day.
Since then, I have never looked back, within a week of discharge I was walking two miles per day and cycling 4 miles immediately thereafter.
I hope you have the same experience or better and if I can be of help please let me know.
by strugglingforanswers on Sat Oct 06, 2007 12:00 AM
In regards of your Whipple procedure, I have a boyfriend who has been through that procedure. It has been a year ago this month. He had it done at Moffit in Tampa, Florida. He was in their facility 9 days. There were complications. His liver abscessed, and his pancreas shut down. Now he is doing better, he is working, but still in pain. He is having trouble putting weight on. He never did chemo or radiation. When you go through this procedure research the doctor, surgeon, and hospital. Make sure the hospital is a teaching hospital. Teaching hospitals are better because you have people there willing to learn. I think Moffit is one of the better hospitals for this procedure, as they do about 8-10 a week. Although the statistics say only 5 out of a 100 survive after 5 years. It depends on the person and how bad your health is and your mental state. I think you have to be a strong willed person. I wish you the best of luck w/ everything you go through. If you want to know more and think i can help you, you can message me.
by myndie on Fri Oct 19, 2007 12:00 AM
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