Looking For Stage 4 Survivors

I'm looking for fallopian tube cancer survivors.  Stage 3-4.  Any out there?

charla 

Charla,

My mom is fighting now with stage 3B clear cell carcinoma.

Jeanne

My mom has 3B fallopian tube ca.  Please tell us your story.  We have not spoken to anyone who has this.

Charla,

I am a 3-year fallopian tube cancer  survivor.  What would you like to know?

Linda Jean 

Hi, thanks for your reply.  I am soo happy to hear you are a 3year survivior and I will pray many more years.  Did you have recurrances? What was your cell type?  My mom is getting her 4th chemo out of an eight month regimen.  SHe feels wonderful has her tired days but is doing exceptionally well.  Any encouraging words are appreciated.

You are in my prayers and I look forward to hearing your story.

I have not had a recurrence.  You have probably been told or read there is a high incidence of recurrence in the first five years.  Then again, it is a rare type and they really don't know.  My fallopian tube ruptured due to an ovarian cyst.  The cancer probably would not have been found in time if that had not occured.  Before surgery my CA 125 was over 800.  Since then it has been around 4.  I will look through my paperwork and get back to you on the cell type.  I was considered young for this type of cancer, just before my 43rd birthday.  I tolerated treatment well.  I had 6 chemo (Carbo and Taxol combo) three weeks apart and seven weeks of radiation, five days a week, after that.  My doctor told me to resume my normal routine as soon as possible and I would recover quicker.  Of course, if it doesn't feel good, stop.  The doctor wanted me to take it easy for the first month then I continued exercising through out treatment.  But let me tell you, the first time I got on the treadmill, I only walked a quarter mile on the slowest speed and I thought it would never end.  This is from a person that almost obsessively worked out six to seven days a week.  After chemo, I would be tired for a day or two and didn't work out on those days.  I found out after the first chemo, take the anti nausea medication for a full week whether you think you need it or not.  I went back to work six weeks after surgery and everyone, including my doctors, was surprised.  My doctor told me it was important to get out of bed every day.  Even if it only means moving from the bed to the couch.  It seems the big question patients have, me included, is when will I feel like me again?  I would say about a year and a half to two years only because it seems your life is dedicated to cancer and doctor appointments.  Also, I understood intellectually that some things would never be the same but it takes longer emotionally.  I know it might seem Pollyannaish, but I think laughing a lot and a positive attitude helps in recovery.  I made jokes through out treatment, read funny books and watched comey shows.  It probably helped that I always have been a rather upbeat and "perky" person

On 10/3/2007 charliT wrote:

I'm looking for fallopian tube cancer survivors.  Stage 3-4.  Any out there?

 

charla 

Hi Charla, 

It's been som long since I've been on this board so I just saw your post.  I hope you are well.

I am a stage 3 survivor.  I was 51 in 12/01 when I was diagnosed.  I will tell you that it has changed my life but I am still living a "healthy" life because as all my doctors say, I am very healthy except for cancer!

I have pretty much been on treatment since my original diagnoses and have had a total of 3 surgeries.  Believe me though that there is hope.  I have cried, pleaded with God, gone through depression and am now very happy to say that I've accepted what is going on.  I'm not limited in any way and to look at me you wouldn't know that there is anything wrong with me.  I go to the CancerTreatment Center of America every 3 months for a scan and they are wonderful.  The CTCA is not local to me so I recieve my treatments locally.  The tumor (s) I have right now have not grown an iota in over a year.  I was under the impression when I was first diagnosed that my survival rate was 3 years.  Well, here I am 6 years later and doing very well.  It isn't the only thing on my mind anymore and I FEEL GREAT!

I hope this helped you some and isn't too far past your post to help or encourage.

Judy