12cm Atypical lung tumor!

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12cm Atypical lung tumor!

by BeckyS on Sat Oct 06, 2007 12:00 AM

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My 66yr old dad just had surgery to remove massive growth. Originally thought it was small cell, more pathology showed Atypical carcinoid - good as we were about to start chemo! Surgery a big deal but he's sitting up and eating today. Waiting for biopsy results. Afraid there'll be small cell in there too. They're talking about radiotherapy when he's healed. Anyone else know anything about this? It was a huge tumor. Only found when his rib broke twice over summer. They found and removed 4 damaged ribs during surgery as well as lymph nodes. Any advice or info greatly appreciated. Prayers and best wishes for all.

RE: 12cm Atypical lung tumor!

by Witchdoctor on Thu Oct 11, 2007 12:00 AM

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Must have been a non funcitioning Carcinoid.  Usually they are found smaller because of Production of Various substances which cause flushing , increased heat rate , sweating etc (called carcinoid syndrome)

In many cases it is a slow growing tumor.  No good studies to show what SHOULD be done post surgery, but, based on size ,extent and lymphnode involvement most would use irradiation to the Locoregiona area.  Chemo could be given with the irradiation for sensitizing effect.  I would not give neo or adjuvant treatment however.

RE: 12cm Atypical lung tumor!

by BeckyS on Sun Nov 18, 2007 12:00 AM

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On 10/11/2007 Witchdoctor wrote:

Must have been a non funcitioning Carcinoid.  Usually they are found smaller because of Production of Various substances which cause flushing , increased heat rate , sweating etc (called carcinoid syndrome)

In many cases it is a slow growing tumor.  No good studies to show what SHOULD be done post surgery, but, based on size ,extent and lymphnode involvement most would use irradiation to the Locoregiona area.  Chemo could be given with the irradiation for sensitizing effect.  I would not give neo or adjuvant treatment however.


Thank you for your response to my message. I had to google some of the terms but I really appreciate your time and good advice. Further Biopsy has found Small Cell there too. He will be getting Chemo and Radiotherapy. Don't know what, how much, or for how long yet. He's off the heavy pain meds for a while at least which were really playing havoc with his mind. Just trying to get him strong again before we start the next stage.

RE: 12cm Atypical lung tumor!

by poolguy on Wed Jan 23, 2008 12:00 AM

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Just rtead your note . How are things now ? Did you do radiation ?

Now Poorly Differentiated!

by BeckyS on Sun Feb 03, 2008 12:00 AM

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Thanks for writing. Dad is still in the middle of his Chemo treatments although we are able to see the end now. Only 2 more to go! He's actually been pretty good on the treatment although it's no fun. A little up and down but nothing major so far. He has had no new scans or x-rays though so I don't know how it's working. Isn't this unusual? They took out the tumor but decided on chemo after seeing possible hot spots just before starting radiotherapy. When they looked at the thing they decided to rename it. He now has a Poorly Differentiated Cancer that they are treating as if it were small cell. We'd read that it's better to have radiotherapy and chemo at the same time but the Doctor says he has to wait until he's finished his Chemo. I can honestly say I think fear of the unknown is one of the most debilitating things about this disease. Dad's had moments when he's felt so bad he's convinced the cancers back full force, or the treatment is going wrong somehow. To be able to share information with him and have the Doctor just put a hand out and reassure him he's normal (or as normal as it gets when you're on Chemo) Actually helps keep the pain and fear level down. Thank God for Cancer Compass and everyone out there willing to share. Best Wishes.
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