NON FUNCTIONING ISLET CELL CARCINOMA, NEUROENDOCRINE TUMORS

Dear all,I have received many emails since my last posting,  i appreciate all the nice notes and encouraging words!!!!For those newly diagnosed, i hope you get to read this, I've said it before and i'll keep saying it.  Being diagnosed with a neuroendocrine tumor is not the end of the world.  This type of pancreatic cancer is fightable!!!!!!  But everyone must get treatment with the doctors that specialize with this cancer.  A regular oncologist will not do!!!  No offense, but our cancer is rare.  Your doing yourself a disfavor if you think they know all there is to know about your cancer, they don't.  I'm not saying they are not good docs, but our cancer is rare and must be treated in a special way.  It is a cancer that can be contained if you seek treatment from someone who deals with this type regularly!!!!"if you can't tell" i feel strongly about anyone diagnosed with a neuroendocrine type tumor, please see a specialist, if you don't know who they are, get in touch with me and i will help you!!!!  Remember, i'm 7 years post original diagnosis and doing great!!!!Take care,Marcie