I finally found someone talking about myxofibrosarcoma. Thank you. I am here a few years later than your original post. I certainly hope that your recovery has progressed well.
My "lump" was on the outer side of my calf. About 8c x 5c. Diagnosed in 8/08. Stage 2 High Grade. After chemo, then surgery, skin graft and radiation. I was very worried that my leg and foot use and movement would be severely affected. Its now been 9 months since surgery. I walk wonderfully. Perhaps not as quickly as before, but I have my leg. The surgery does leave quite a scar, even with a skin graft. At first I was very concerned about how it would look. However, after going though all the steps to treatment and cure, and observing many others with greater physical limitations than mine, I thank God for my healing and will wear my scar as badge of victory.
The orthopedic surgeon insisted on stretching and strengthening the leg muscles and tendons. I found that the practice of Pilates to be extremely effective. During the first few months after radiation, healing had been slowed. Also some tissue damage made the leg painful. But, lately I have noticed a lessening of the pain and fatigue associated with being on my feet. It is getting better!
I would like to hear from others who have also had myxofibrosarcoma. To know of the outcomes and any lung mets that may have occurred. So far, I am OK on that end.
Connie