Any Latest Treatment for Neuroendocrine CA of Pancreas

6 Posts | Page(s): 1 

Any Latest Treatment for Neuroendocrine CA of Pancreas

by TAUQEER on Wed Oct 17, 2007 12:00 AM

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I am suffering from Neuroendocrine CA of Pancreas since Jan 2005 which is declared inoperabable. I have received chemo therpy with Streptozocin(Zanosar) and Doxyrubicin. It stopped but it started regrowth and I am again getting Streptozocin but its response is very poor. Now the size is about 8cmx5cm. Kindly give me some advise what to do

RE: Any Latest Treatment for Neuroendocrine CA of Pancreas

by sonnie on Wed Oct 17, 2007 12:00 AM

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Sounds likely its time to switch chemos since you no longer responding to current protocol. Seek second opinion if oncologist doesn't consider switching to different type.

Is radiation an option due to size of tumor to shrink it? Many tumors have been successfully reduced from chemoradiation )sorry- I'm not familar with Neuroendocrine but assume since you've been on chemo that possibly targeted radiation might be an option for you. I'd obtain second opinion from top specialist in your area. www.PanCan.org helps with finding an aggressive surgeon in your area if you call and ask them for recommendations. I wish you the best. Sonnie 

 

RE: Any Latest Treatment for Neuroendocrine CA of Pancreas

by Dog_Lover on Thu Oct 18, 2007 12:00 AM

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Hello,

     I have the same type of cancer....neuroendrocrine.  I have been fighting this disease since 2000.  I tried those type of drugs with no success.  Now I have taking interferon-a injections.  I give them at home to myself.  I also take a sandostatin (spelling) injection at the chemo lab once evey three weeks.  The sandostatin injection was working very well until recently.  I don't know why the change... so they put me on the interferon drug. I guess they have had positive results with it.

     I go today to get the results of my latest cat to evaluate my tumors as they had once again started to grow.  Im hoping these latest meds will shrink my tumors.  Best of luck.  Keep my posted of your success.

     Ask you oncologist about interferon.  I would contact pancan too. They can put you directly in touch with people who have this same cancer.

 

Dog Lover  

 

 

RE: Any Latest Treatment for Neuroendocrine CA of Pancreas

by elainex on Sun Oct 28, 2007 12:00 AM

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hi dog lover,

   i am also a neuroendocrine cancerpatient.  i was wondering if the sandostatin shots were to control the symptons of carcinoid syndrome or was it to stop the growth and spread of the tumors?  my local oncologist will not prescribe sandostatin because i do not have the symptoms of carcinoid syndrome (flushing, diarrhea, etc).

  you were dx seven years ago, have you had surgery done ? what other treatments have you gone through?

 elaine.

RE: Any Latest Treatment for Neuroendocrine CA of Pancreas

by Malea on Thu Jan 03, 2008 12:00 AM

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On 10/17/2007 TAUQEER wrote:

I am suffering from Neuroendocrine CA of Pancreas since Jan 2005 which is declared inoperabable. I have received chemo therpy with Streptozocin(Zanosar) and Doxyrubicin. It stopped but it started regrowth and I am again getting Streptozocin but its response is very poor. Now the size is about 8cmx5cm. Kindly give me some advise what to do

Hello - I have pancreatic neuroendocrine cancer. My doctor, Dr. Larry Kvols at the H.Lee Moffitt Cancer Research Center in Tampa, florida, may be a good resource for you.  After I had surgery, radio frequency ablation and chemotherapy, Dr. Kvols referred me to the Lu-177 Radioisotope treatments over in Holland.  They are also doing these treatments in Uppsala, Sweden, Germany and Italy.  You may wish to consult with Dr. Kvols in Tampa, or Doctor Odorisio at the University of Iowa, in Cedar Rapids for additional opinions on your cancer.  I have found talking to several doctors so encouraging.  The Lu-177 Radioisotope (radiation) treatments saved my life.   

RE: Any Latest Treatment for Neuroendocrine CA of Pancreas

by TAUQEER on Wed Jan 09, 2008 12:00 AM

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On 1/3/2008 Malea wrote:

 

On 10/17/2007 TAUQEER wrote:

I am suffering from Neuroendocrine CA of Pancreas since Jan 2005 which is declared inoperabable. I have received chemo therpy with Streptozocin(Zanosar) and Doxyrubicin. It stopped but it started regrowth and I am again getting Streptozocin but its response is very poor. Now the size is about 8cmx5cm. Kindly give me some advise what to do

a lot for sending me information about Erasmus medical centre Holland

Kindly give some details about their contact no, Dr name whom I should contact ans is there any side effects also

I shall be grateful

Tauqeer

Hello - I have pancreatic neuroendocrine cancer. My doctor, Dr. Larry Kvols at the H.Lee Moffitt Cancer Research Center in Tampa, florida, may be a good resource for you.  After I had surgery, radio frequency ablation and chemotherapy, Dr. Kvols referred me to the Lu-177 Radioisotope treatments over in Holland.  They are also doing these treatments in Uppsala, Sweden, Germany and Italy.  You may wish to consult with Dr. Kvols in Tampa, or Doctor Odorisio at the University of Iowa, in Cedar Rapids for additional opinions on your cancer.  I have found talking to several doctors so encouraging.  The Lu-177 Radioisotope (radiation) treatments saved my life.   


 

thanks
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