Urachal cancer

Just found out that my dad has urachal cancer that has spread to the stomach lining.  It was left for 4 years due to misdiagnosis by a 'consultant' on the NHS.

He begins his chemo in 3 weeks with treatments for bowel cancer that I have read are being the most effective drugs for this type of cancer.

They wont operate due to the spread of the cancer.

I've read that somewhere in the US a clinic is researching this.  Does anyone know which clinic?  If you could let me know I would greatly appreciate it.

thanks 

On 10/18/2007 James Cliff wrote:

Just found out that my dad has urachal cancer that has spread to the stomach lining.  It was left for 4 years due to misdiagnosis by a 'consultant' on the NHS.

He begins his chemo in 3 weeks with treatments for bowel cancer that I have read are being the most effective drugs for this type of cancer.

They wont operate due to the spread of the cancer.

I've read that somewhere in the US a clinic is researching this.  Does anyone know which clinic?  If you could let me know I would greatly appreciate it.

thanks

 

Hi Jeff  sorry to hear about your dad, but you have come to the right place for help and information about urachal cancer. Have you read any of the messages under the OTHER option ? there you will find more messages from other people dealing with urachal cancer and I know some have gone to MD anderson for a clinical trial for urachal cancer you might find that under urachal survivors?? I too have urachal cancer and I am on chemo since march and I have had two surgeries. Feel free to ask any questions I might be able to help and if I can't I know someone else here might know better than me. Let me know if you find any information.

Dasiy Bear

I underwent major abdominal surgery for the removal of a urachal mucinous adenocarcinoma - along with hald my bladder - in March 2006. The operation was successful and since then I have gone from strength to strength. I am currently in remission.

Following surgery I was referred to an oncologist who then referred me to a specialist PMP (pseudomyxoma peritonei) clinic at the North Hampshire Hospital, Basingstoke, UK. This is because my tumour was identified as a variant of PMP and North Hampshire is one of only two hospitals in the UK that specialise in this rare form of cancer. The other specialist clinic is the Christie Hospital, Manchester. Both perform the Sugarbaker "shake and bake" total cytoreduction operation.

So far I have not needed chemo or further surgery. I have just had regular CT scans, which have showed no evidence of a recurrence of the tumour.